World FTD Awareness Week 2016

World FTD Awareness Week is September 25 – October 2. Global collaboration is the best way to improve quality of life for people facing FTD — and to drive treatment toward a cure. Together, we can bring hope for a future in which FTD is effectively diagnosed, treated, cured, and even prevented.

For thlogoe second year, we are joining together to mark a common week for advocacy to raise awareness of FTD, and the need for a comprehensive, collaborative response. For all those whose lives have been touched by FTD, that response cannot come soon enough.

Wherever they live, families deserve hope for a future in which FTD in effectively diagnosed, treated, cured, and ultimately, prevented.

Go to the AFTD site for more information about events and what you can do to participate.

FTD Professional Caregiver Presentation in Southbury

FirstLight Home Care’s “Break Fast & Business”, a networking meeting for home healthcare and business professionals

Topic: “Caregiving for a Person Living with Dementia caused by Frontotemporal Degeneration (FTD)”

0056Speaker: Ed Fitzgerald, caregiver and volunteer with the Association for Frontotemporal Degeneration

Ed will talk about what FTD is, how it differs from Alzheimer’s, his experience as a caregiver for his wife including an approach to using the iPad that he developed to keep her engaged, and resources available for professional

When: Friday, September 23 from 8:00 am to 9:00 am

Where: On the Mend Medical Supplies & Equipment, 385 Main Street South, Southbury, CT 06488

RSVP required, space is limited: Sara Guillemette 203-577-8979,

FTD Caregiver Support Group Meeting

Date: Sunday, September 18, 1:00-2:30pm 

Location: Arden Courts Memory Care, 45 South Rd, Farmington, CT.

The CT FTD Foundation has a support group meeting for all caregiver’s and families/friends who have a loved one diagnosed with Frontotemporal Degeneration (FTD).

Courtyard-003The support group meetings are a chance for everyone to share their experiences and express concerns. It also gives a chance to share ideas that have worked for other caregivers going through the same experience. Meetings are informal.

You are welcome to bring your loved one with FTD, Arden Courts will provide respite care in a separate room. Please just let us know in advance if your loved one will attend.

Meetings are the third Sunday of every month at Arden Courts Memory Care, 45 South Rd, Farmington, CT. Time: 1:00pm – 2:30pm. Hosted by the CT FTD Foundation, meetings are free. For more information contact

FTD Education and Fundraiser – AFTD’S FOOD FOR THOUGHT

Food for Thought (FFT) is a grassroots campaign created to educate people about FTD, while raising money to help fight this disease.

FFT 2016 is the fourth annual campaign timed to begin during World FTD Awareness Week, FfTlogothis year FFT will run for two weeks, from September 25 through October 9, 2016.

Event hosts can plan and organize any type of event as long as food is included.

Find out more at An FTD Grassroots Toolkit

Got some ideas at Food for Thought Event Ideas


Alzheimer’s Youth Alliance (AYA) from Fairfield County

I just heard about this group. It’s great to see young people getting involved!

The Alzheimer’s Youth Alliance (AYA), a group of about 20 high school students from across Fairfield County, raises awareness and funds for the Alzheimer’s Association.

FouAYA.JPGnded by Ava Vanech, a freshman at Sacred Heart University, to honor her grandfather who had Alzheimer’s disease. Although she never got to meet him, she sees the impact this disease has on her family.

This inspired her to spearhead the founding of the group. In 2015 the group organized a walk team to raise over $16,000! 

They will be at the Alzheimer’s Walk on September 18th at Calf Pasture Beach in Norwalk.

Go to the Team page of ALZHEIMER’S YOUTH ALLIANCE to support them.


2016 Walk to End Alzheimer’s – Fairfield County, CT

hdr.JPGHeld annually in more than 600 communities nationwide, the Alzheimer’s Association Walk to End Alzheimer’s® is the world’s largest event to raise awareness and funds for Alzheimer’s care, support and research. This inspiring event calls on participants of all ages and abilities to reclaim the future for millions!

The local walk is at Calf Pasture Beach in Norwalk on Sunday, September 18, 2016. Click here for details.

I’m walking with TEAM MCKEE, click here to sign up.