I saw this on the AFTD site:
“Stuart Zuckerman, age 62 and affected with FTD, will run his last race. A former marathon runner and father to Jennifer and Eric Zuckerman (fundraisers for AFTD), Stuart will participate in the Manasquan Turkey Trot in New Jersey on Saturday, alongside his son and daughter. Click here to read the article on examiner.com.”
His family has set up a web site where people can get more info on FTD and help support efforts to find a cure.