Excellent FTD Presentation

Rebekah Wilson, the Marketing Director at Arden Courts of Farmington, did a presentation at the CT Alzheimer’s Dementia Conference this past week, called “Frontotemporal Dementia; Behavioral Strategies”.

She talked about the differences between FTD and other forms of dementia, described the subtypes of FTD, discussed common behavioral expressions in FTD and strategies for managing behaviors.

She did a great job!

As a sign of the interest in FTD, the room was overflowing, I took my time getting to the room and ended up sitting in the hallway looking in via the doorway. I would estimate there were 75+ attendees.

I know Rebekah from the CT FTD Foundation Support Group that she hosts at Arden Courts and knew she was very familiar with FTD, but hearing her present made me realize she knows even more than I thought.


Support Group Meeting – Norwalk Senior Center – 3/27

The Caregiver Support Group at the Norwalk Senior Center is for caregivers of family members or friends diagnosed with Alzheimer’s, FTD or other Dementias.

NSCThursday, March 27, 2014, 10:30 AM

Norwalk Senior Center, 11 Allen Road, Norwalk, CT (map)

The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information that might be helpful. Meetings are friendly and informal. Occasionally there are themes and guest speakers.

Meetings are on the second and fourth Thursdays of the month. At the meeting on the second Thursday, there are Dementia Care Specialists from Wilton Meadows who provide activities for loved ones while caregivers meet.

Hosted by Lynn Westfield, the group is free and open to all. Membership in the Senior Center is not required. For more information or if you are interested in participating, please call Lynn at (203) 847-3115 ext. 108 or send an email to her at mow@norwalksc.org.

What happens if I am not around?

This came up at my last caregiver support group meeting, what happens to my loved one if something happens to me? I had thought of this a year or so ago.

If I get hit by a bus crossing the road on the way to gym, what do my sons know about taking care of my wife.

CG DocMy first thought was the meds. So I opened up my word processor and created a list of meds.  Then I thought, what about the MDs, who they are and their contact info. Then I thought about insurance. Twelve pages later I had completed my Caregiver Instructions for Mom.

I included a list of friends, neighbors, who was good about being around Mom and who was not, and what they did together, coffee, movies; the itinerary for the day, Subway for lunch, flatbread veggies and cheese (extra cheese) at the Subway in Wilton Center where they all knew us and had patience with my wife; Judge Judy from 4 to 5,the Village Market for prepared food for dinner, checkout with Iris so Mom can chat with her.

Click here for the table of contents to help you develop a guide of your own. CaregiverInstructionsMom-TOC

AFTD’s Education Conference a Huge Success!

With 248 attendees, this was the largest gathering of FTD caregivers, people affected, families and medical professionals to date.

I attended the conference for the first time and thought it was wonderful. Great info, well run, met people who I had only talked to on the phone and familiar faces from the support groups I go to.

The AFTD hosted its Education Conference and Annual Meeting in White Plains, NY, on March 14, 2014.

AFTD Conference 2014Below are links to some of the presentations.

Dr. Ted Huey of the Taub Institute of Columbia University gave the clinical address entitled FTD Overview, Trends and Developement.

Click their names for the slides on the genetics presentations from Jill Goldman and Nadine Tatton.

The annual meeting slides presented by AFTD’s Executive Director, Susan Dickinson are also available for viewing.

Robert Bazell, former NBC Nightly News chief science and health correspondent, gave the keynote address: Making Yourselves HeardClick here for the conference program.

CT FTD Foundation Support Group Meeting

The CT FTD Foundation support group meeting is for caregiver’s and families/friends. You can bring your loved one and Arden Courts staff provides respite care in a separate room. Just let them know in advance.


About an hour from the Norwalk area. Well worth the trip. A great group of people.

Sunday March 16, 2014 1 – 3 PM
Arden Courts Assisted Living: 45 South Rd., Farmington, CT 06032  (map)

For more information and RSVP contact info@ctftdfoundation.org.