Here is a posting from the AFTD Facebook page, requesting participation in a survey. I just did it and it is quick, took under 5 minutes.
“Help FTD caregiver needs to be represented. Please take just 3 minutes to answer 25 straightforward questions in this international survey.
The National Reference Centre for Alzheimer’s and Dementia care in Salamanca, Spain, has developed a survey for caregivers of people with Alzheimer’s or other dementias in order to know the status of home care worldwide. All data is anonymous. The survey is in English. (If it does not load properly at first, please refresh your screen.)”
Time: 4:30pm to 5:45pm
Location : The Alzheimer’s Association 360 Lexington Ave., a couple of blocks from Grand Central Terminal, 4th Floor, New York, NY
Facilitator : Jill Goldman, MS, MPhil, CGC – 212-305-7382 – JG2673@cumc.columbia.edu. Anyone interested in attending must contact Jill.
The Connecticut Frontotemporal Dementia Foundation support group meeting is for caregivers, families and friends. You can bring your loved one and Arden Courts staff provides respite care in a separate room.
About an hour from the Norwalk area. Well worth the trip. A great group of people.
This meeting will be in two parts, the first half will be a presentation by Rebekah Wilson from Arden Courts on the stages and progression of FTD and the second will be the support group.
For those who may not feel comfortable at the support group, you are welcome to attend the informative session and leave before the support group portion.
Sunday May 18th, 2014 1 – 3 PM
Arden Courts, Memory Care Community: 45 South Rd., Farmington, CT 06032 (map)
For more information, to RSVP, and if you are bringing your loved one, contact Meghan Roscoe at firstname.lastname@example.org.
For more info about the Connecticut Frontotemporal Dementia Foundation, go to www.ctftdfoundation.org.