Here is a posting from the AFTD Facebook page, requesting participation in a survey. I just did it and it is quick, took under 5 minutes.
“Help FTD caregiver needs to be represented. Please take just 3 minutes to answer 25 straightforward questions in this international survey.
The National Reference Centre for Alzheimer’s and Dementia care in Salamanca, Spain, has developed a survey for caregivers of people with Alzheimer’s or other dementias in order to know the status of home care worldwide. All data is anonymous. The survey is in English. (If it does not load properly at first, please refresh your screen.)”