2nd Annual CT FTD Foundation Golf Tournament

The CT FTD Foundation is holding their 2nd Annual Golf  Tournament on August 4th at the Stanley Golf Course. Come on out for a fun day and to help a good cause! The money raised goes toward funding FTD research and to raise awareness of the disease.    

CT FTD LogoRegistration is at 9:30 with a shot gun start at 10:30. The tournament will be run as a scramble and there will be a box lunch, dinner, drink ticket, and raffles. Registration is $140 per person and can be done online or by check. You are welcome to join us for just the dinner, tickets are $40.

Visit their web site at www.CTFTDFoundation.org to register online or print a registration form.

Interested in being a sponsor? Contact them at info@ctftdfoundation.org for details.

FTD Caregiver Support Group Meeting – NYC – July 16th

Time: 4:30pm to 5:45pm

Location : The Alzheimer’s Association 360 Lexington Ave., 3rd Floor, New York, NY – a couple of blocks from Grand Central Terminal

Facilitator : Jill Goldman, MS, MPhil, CGC  – 212-305-7382 – JG2673@cumc.columbia.edu. Anyone interested in attending must contact  Jill.


I came across this movie that is playing tonight in Stamford at the Avon Theater.


Excerpts from the description.

“As dementia continues to affect millions of elderly Americans, Alive Inside: A Story of Music & Memory reveals a remarkable, music-based breakthrough that has already transformed lives …. we learn that songs from a patient’s past can awaken memories and emotions that have been asleep for years, sometimes decades …. Countless instances in Alive Inside provide proof that music stimulates activity in dementia-affected parts of the brain and transforms the quality of life of those often left to languish in silence.”

It was a 2014 Sundance Film Festival Audience Award Winner for Best Documentary.

Caregiver Support Group at the Norwalk Senior Center: July 10th, 10:30 – 11:30am

The Caregiver Support Group at the Norwalk Senior Center is for caregivers of family members or friends diagnosed with Alzheimer’s, Parkinson’s or Dementia. 

Questions have come up in the past few months about travelling with someone with dementia. So we have invited Eva Greenwald, of Eva’s Best Travel & Cruises, to meet with us and will share tips for traveling with someone with memory loss. She has worked with families to advise and make the various arrangements for care, assistance and equipment if necessary so they can enjoy their vacation together as a family.

Dementia Care Specialists from Wilton Meadows will be available to provide activities for loved ones while caregivers meet. Please let us know if you will be bringing your loved one.

The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information that might be helpful. Meetings are friendly and informal. Occasionally there are themes and guest speakers.

Meetings are on the second and fourth Thursdays of the month. At the meeting on the second Thursday, there are Dementia Care Specialists from Wilton Meadows who provide activities for loved ones while caregivers meet.

Hosted by Lynn Westfield, the group is free and open to all. Membership in the Senior Center is not required.

For more information or if you are interested in participating, please call Lynn at (203) 847-3115 ext. 108 or send an email to her at mow@norwalksc.org.

Susan Dickinson, Executive Director, AFTD, was interviewed on “NeuroMatters: The Brink of Alzheimer’s”

From the AFTD web site:

In case you missed the live broadcast, listen here to Susan Dickinson, Executive Director, AFTD, being interviewed by Dr. Samuel Brinkman on the internet radio program NeuroMatters: The Brink of Alzheimer’s, which aired on Tuesday, June 24.

Susan and Dr. Brinkman discussed FTD’s clinical characteristics and AFTD’s role in public education and support. Also, a couple affected by FTD discussed their experiences as patient and caregiver.