From the AFTD web site:
“Frontotemporal degeneration (FTD) has been formally included in national research priorities to cure Alzheimer’s disease and other dementias by 2025. For the full press release, click here.”
“The update to the NAPA plan also coincided with AFTD’s release of a comprehensive research white paper, FTD Research and Drug Development Landscape Analysis.
On August 14, the guest speaker will be Tania Paparazzo, SW CT Reg. Director of the Alzheimer’s Association.
There will also be time for a group discussion.
Usually there are caregivers from The Greens/Wilton Meadows to provide activities for loved ones at the meetings on the second Thursday, but they will not be at this one.
The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information that might be helpful. Meetings are friendly and informal. Occasionally there are themes and guest speakers.
Meetings are on the second and fourth Thursdays of the month.
Hosted by Lynn Westfield, the group is free and open to all. Membership in the Senior Center is not required.
For more information or if you are interested in participating, please call Lynn at (203) 847-3115 ext. 108 or send an email to her at firstname.lastname@example.org.
From a CT FTD post on Facebook: “Thank you to everyone who came out and played today! We had beautiful weather, lots of fun, and a ton of money raised.”
Pictures on Facebook and the CT FTD Foundation web site.
Location : The Alzheimer’s Association 360 Lexington Ave., 3rd Floor, New York, NY – a couple of blocks from Grand Central Terminal
Facilitator : Jill Goldman, MS, MPhil, CGC – 212-305-7382 – JG2673@cumc.columbia.edu. Anyone interested in attending must contact Jill.
Esther Harvey, President of the CT FTD Foundation and her son Keith shared the family story with FOX CT’s Mike Magnoli in an effort to raise awareness about FTD and help others connect to resources.
Family Opens Up About Rare Form Of Dementia
Read more and see the video at: http://foxct.com/2014/07/27/family-opens-up-about-rare-form-of-dementia/#ixzz39LzuHIa9