“A Night with FTD” – October 9th

FFTThe CT FTD Foundation is sponsoring “A Night with FTD” at the Summit at Plantsville.

Jill Goldman, Genetic Counselor from Columbia University, and Dr. Ted Huey, Assistant Professor of Psychiatry and Neurology at Columbia University, will be speaking.

Jill S Goldman, MS, MPhil, will talk about the genetics of FTD and about a program called “A Friend for Rachel”, an innovative project that pairs future healthcare professionals with people diagnosed with dementia with the goal of changing perspective and reducing stigma.

Dr. Huey’s will talk about new developments in the field, his research has focused on patients with frontotemporal lobar degeneration (FTLD) and related disorders.

The event begins at 7pm. The Summit is at 261 Summit Street, Plantsville, CT 06479

For more information or to RSVP, contact esther.harvey@ctftdfoundation.org.

This event is part of the AFTD’s Food for Thought nationwide awareness campaign.

9th International Conference on Frontotemporal Dementias is on October 1st.

It’s a long way from Fairfield County, but the 9th International Conference on Frontotemporal Dementias – Oct 23-25, 2014 – is meeting at the Sheraton Vancouver Wall Centre Hotel Vancouver, Canada. 

VancouverAccording to the AFTD web site, “The deadline for early bird caregiver registration for is on October 1st. For more information about the ICFTD and to register, visit the conference page on the AFTD website.”.

From the ICFTD web site: “The ICFTD attracts a diverse audience that includes clinicians (neurologists, neuropsychologists, psychiatrists, geriatricians, neuroradiologists), neuroscientists (molecular geneticists, neuropathologists, neurobiologists, pharmacologists) and their trainees, as well as representatives from biomedical and pharmaceutical industries, government agencies, patient advocacy groups, patients, their families, caregivers and interested laypersons. Attendance has grown steadily from the inaugural event to more than 600 at the 2012 conference.

The ICFTD is now well-recognized as the primary venue for the synthesis, exchange and dissemination of research evidence related to FTD, where experts from diverse backgrounds share recent discoveries, insights and opinions.”

For more info about the conference, go to www.ftdvancouver2014.com

Published abstracts are available at www.ftdvancouver2014.com/published-abstracts/.



CT FTD Foundation Support Group – 9/21

The CT FTD Foundation has a support group meeting for all caregiver’s and families/friends who have a loved one diagnosed with frontotemporal dementia (FTD).

ArdArdenCourten Courts of Farmington, 45 South Rd Farmington, CT, Sunday Sept. 21, 1:00 PM.

The support group meetings are a chance for everyone to share their experiences and express concerns. It also gives a chance to share ideas that have worked for other caregivers going through the same experience. Meetings are informal.  You are welcome to bring your loved one with FTD, Arden Courts will provide respite care in a separate room.  Please just let us know in advance if your loved one will attend.

For more information contact info@ctftdfoundation.org. Please RSVP for each meeting.

Food for Thought, October 5-12, campaign to educate people about FTD

From the AFTD web site: “Food for Thought (FFT) is a grassroots campaign held during the first week of October (5-12) to educate people about FTD, while raising money to help fight the disease. It involves AFTD supporters from every state hosting events to start a public dialogue about this little known, life-altering disease. Event hosts can plan and organize any tyFfTlogope of event as long as food is included.”

Details at http://www.theaftd.org/get-involved/host-an-event/aftds-food-for-thought.

Support Group Meeting – Norwalk Senior Center – Sept. 11

I will be the featured speaker at the meeting and will also be leading the meeting as Lynn Westfield will be on vacation.

The meeting is at the Norwalk Senior Center, 11 Allen Road, Norwalk, from 10:30am to 11:30am.


Meeting announcement:

Featured speaker: Ed Fitzgerald, support group member and Technology Specialist will speak about ways new technology can be used by caregivers with their loved ones to improve the quality of their lives.

There will also be time for group discussion.

The Caregiver Support Group at Norwalk Senior Center is for caregivers of family members or friends diagnosed with Alzheimer’s, Parkinson’s or Dementia. The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information that might be helpful.

Meetings are friendly and informal. Occasionally there are themes and guest speakers. The group meets on the second and fourth Thursday of the month, is free and open to all. Membership in the Senior Center is not required.

For more information or if you are interested in participating, please call Ed Fitzgerald at (203) 803-0714 or send an email to edfitztech@gmail.com.