NIH announces grants for frontotemporal degeneration research

From the NIH site: “Projects will help advance research through collaborations and development of novel strategies”

NIHThe National Institutes of Health will award three large, five-year projects on a specific form of dementia, known as frontotemporal because of the areas of the brain that are affected. The projects, …. announced today total more than $5.9 million for 2014.

“The projects aim to advance our understanding of frontotemporal degeneration by improving diagnosis, identifying preventive strategies and providing new insights into the genetics underlying this complex disorder,” said Margaret Sutherland, Ph.D., program director at NINDS.

For more info, go to

Fearless Caregiver Conference – New Haven – Nov. 6

I’ve attended this a couple of times, felt it was very worthwhile. The leader of the conference, Gary Barg, is full of energy, inspiration and good ideas.




Go to Caregiver Conference for more info and to register. Caregivers can attend for free, but you need to register in time.

New Young Adult Facebook Community – from the AFTD

I saw this on the AFTD site:

icon_fb“AFTD is pleased to announce a new Facebook Group specifically for those in their 20s and 30s who have a family member or friend with FTD. Recognizing that many of the available FTD supports and resources focus on spouses or young children with a parent affected by FTD, AFTD’s Young Adult Facebook Group hopes to serve as an online forum and gathering place specifically for young adults.

This is a “secret” Facebook group; therefore, only members can find the group and see posts. If you would like to join, please send an email to and include the email address you used to set up your Facebook account.”


Norwalk Senior Center Caregiver Support Group Meeting – 10/23

The Caregiver Support Group at Norwalk Senior Center is for caregivers of family members or friends diagnosed with Alzheimer’s, Parkinson’s or Dementia. The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information that might be helpful.

The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information that might be helpful. Meetings are friendly and informal. Occasionally there are themes and guest speakers.

Time: 10:30 to 11:30am

Location: 11 Allen Road, Norwalk, CT.

Meetings are on the second and fourth Thursdays of the month.

Hosted by Lynn Westfield, the group is free and open to all. Membership in the Senior Center is not required.

For more information or if you are interested in participating, please call Lynn at (203) 847-3115 ext. 108 or send an email to her at

CT FTD Foundation support group meeting – 10/19

The CT FTD Foundation has a support group meeting for all caregiver’s and families/friends who have a loved one diagnosed with frontotemporal dementia (FTD).

ArdArdenCourten Courts of Farmington, 45 South Rd Farmington, CT, Sunday Oct. 19, 1:00 – 2:30 PM.

The support group meetings are a chance for everyone to share their experiences and express concerns. It also gives a chance to share ideas that have worked for other caregivers going through the same experience. Meetings are informal.  You are welcome to bring your loved one with FTD, Arden Courts will provide respite care in a separate room.  Please just let us know in advance if your loved one will attend.

For more information contact Please RSVP for each meeting.

FTD Event in Fairfield, Oct. 9

Just found out about this – from the AFTD web site –

Food for Thought in CT– Brian Kelahan will host “To Whom I May Concern”, patients and caregivers read their personal stories of coping with FTD, at the Fairfield Senior Center, 100 Mona Terrace, Fairfield, CT, on October 9th at 6pm.

There was no contact info, the senior center number is 203.256.3166.

I’ll be attending the CT FTD Foundation event in Plantsville that evening so won’t be able to make this one.