From the AFTD web site:
This article from The Age out of Australia discusses the effects of dementia on sexual behavior.
“While Mrs Fairhall loved their intimate connection, she says sometimes the mismatch in their desire for sex became difficult. For many years, she grappled with these issues privately because they were too difficult to talk about with friends and family, and health professionals never seemed to ask leading questions that would prompt the discussion.
Despite being raised in a family where discussions about sex were taboo, Mrs Fairhall, 71, has chosen to speak out about her experience because she suspects too many people do not understand the many varied and complex sexual issues dementia raises. This week the world’s attention was drawn to the case of an American man charged with sexually assaulting his wife while she was living with dementia in a residential aged care facility.”
AFTD will hold its 2015 Education Conference at the DoubleTree Hotel in Mission Valley, California on Friday, April 24. Attendees–to include individuals diagnosed, family members and health professionals– will engage experts in FTD research and clinical care, nonpharmacological interventions and hospice. The full press release is accessible here. Conference agenda is available here.
The CT FTD Foundation has a support group meeting for all caregiver’s and families/friends who have a loved one diagnosed with Frontotemporal Degeneration (FTD).
The support group meetings are a chance for everyone to share their experiences and express concerns. It also gives a chance to share ideas that have worked for other caregivers going through the same experience. Meetings are informal. You are welcome to bring your loved one with FTD, Arden Courts will provide respite care in a separate room. Please just let us know in advance if your loved one will attend.
Meetings are the third Sunday of every month at Arden Courts Memory Care, 45 South Rd, Farmington, CT. Time: 1:00pm – 2:30pm. Hosted by the CT FTD Foundation, meetings are free. For more information contact firstname.lastname@example.org.
From the AFTD web site:
Run for AFTD! – Have you registered for a marathon, mud run, triathlon or other athletic event this spring? Why not raise some funds for AFTD in the process! Click here to start your fundraiser or contact Liz email@example.com for more information. We’ll send you an AFTD-Team tek shirt you can wear at the race!
I just became aware of this organization that funds research for FTD.
From their web site:
“The Bluefield Project was established in 2010 to fund research directed towards curing frontotemporal dementia (FTD). Frontotemporal dementia is a devastating, early-onset degenerative brain disease and is recognized as a common cause of dementia in people under the age of 60 years.”
“The Bluefield Project was founded by a family group whose lives have been directly impacted by frontotemporal dementia. Frustrated that there were no treatment prospects on the horizon for frontotemporal dementia, this family provided funds to the University of California, San Francisco to form the Consortium for Frontotemporal Dementia Research (CFR). The Bluefield Project intends to raise awareness and increase support to accelerate frontotemporal dementia research.”
Visit www.bluefieldproject.org for more information.
Date: April 9th, 10:30 to 11:30am
Location: Norwalk Senior Center, 11 Allen Road, Norwalk
The Caregiver Support Group at the Norwalk Senior Center is for caregivers of family members or friends diagnosed with Alzheimer’s, Parkinson’s or Dementia.
The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information that might be helpful. Meetings are friendly and informal. Occasionally there are themes and guest speakers.
Meetings are on the second and fourth Thursdays of the month. At the first meeting of the month, there are usually Dementia Care Specialists from Wilton Meadows who provide activities for loved ones while caregivers meet. Please call to confirm before bringing your loved one.
Hosted by Lynn Westfield, the group is free and open to all. Membership in the Senior Center is not required.
For more information or if you are interested in participating, please call Lynn at (203) 847-3115 ext.108 or send an email to her at firstname.lastname@example.org.
From the AFTD web site:
“The Boston Globe interviewed Katie Brandt, who is AFTD’s New England volunteer coordinator and Massachusetts General Hospital’s FTD support group co-leader. Katie is working to raise awareness about FTD, which claimed the life of her husband, Mike Brandt, diagnosed at the age of 29.
The article, available here, also talks about FTD symptoms, progression and associated challenges facing diagnosed persons and their caregivers.”