“FTD Doesn’t Bring Me Flowers – Living with FTD”

A blog I came across, from someone who has FTD, liked what it says, could connect with it, wanted to share it …

“Fronto Temporal Lobe Dementia – A different kind of dementia, often called FTD. With this blog, I am hoping to offer information and insight into dealing with having FTD, or dealing with someone who has it. I do have FTD and hope this will somehow help…”  – www.ftdnoflowers.blogspot.com

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Caregiver Respite Grants from the AFTD

The AFTD offers respite grants to help full-time, unpaid caregivers arrange short-term daytime or overnight care for loved ones diagnosed with FTD.  Caregivers decide how to best use the funds based on their situation and needs.

AFTD LogoThe maximum annual grant is $500.  There are few requirements other than having a loved one who has a documented diagnosis of FTD. Materials to apply for a respite grant can be downloaded here. People who received a grant in previous years are welcome to apply again.

Caregiver Support Group at the Norwalk Senior Center – May 28th

Date: May 28th, 10:30 to 11:30am

Location: Norwalk Senior Center, 11 Allen Road, Norwalk

The Caregiver Support Group at the Norwalk Senior Center is for caregivers of family members or friends diagnosed with Alzheimer’s, Parkinson’s or Dementia.

The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information thatNSC Photomight be helpful. Meetings are friendly and informal. Occasionally there are themes and guest speakers.

Meetings are on the second and fourth Thursdays of the month. At the first meeting of the month, there are usually Dementia Care Specialists from Wilton Meadows who provide activities for loved ones while caregivers meet. Please call to confirm before bringing your loved one.

Hosted by Lynn Westfield, the group is free and open to all. Membership in the Senior Center is not required.

For more information or if you are interested in participating, please call Lynn at (203) 847-3115 ext.108 or send an email to her at mow@norwalksc.org.

Alzheimer’s Association – Longest Day – June 21st

The Alzheimer’s Association’s 2nd largest campaign … The Longest Day … is June 21st.

Long DayThe Longest Day is a team event to raise funds and awareness for the Alzheimer’s Association®. Held annually on the summer solstice, the duration of this sunrise-to-sunset event symbolizes the challenging journey of those living with the disease and their caregivers.

The hope is that people build teams and do something all day to show how long a caregiver’s day is.  The day is typically to honor someone with Alzheimer’s or a dementia and each team will raise money for the Alzheimer’s Association.

Teams are encouraged to create their own experience as they fundraise and participate in an activity they love to honor someone facing the disease.

Start a team, join a team, spread the word, and/or donate, even if it is $10 every little bit helps. Ideas can be simple, playing any type of game, golf, running, baking all day, etc.

If you would like to start a team, contact Mel Larkin (her husband has FTD), 860-828-2828, at the Alzheimer’s Association, or click here for more information.

A short film about FTD from Katie Brandt

Sharing an email from Katie Brandt, founder of Love Is Out There, an education and awareness campaign about Frontotemporal Degeneration, caregiving, and taking the power back from rare disease. Katie Brandt is an advocate who lost her husband to FTD, and she is not letting FTD have the final word in her family’s story.

“I am very excited to share something special with all of you today, it is the link to a short film that was produced by four students from Boston University’s Hothouse Productions.  I feel very lucky to have been matched with students who were so enthusiastic, sensitive and professional.  We have been working on the film since January and I am very happy with what the students have created.  I will use this film to reach out to media outlets to continue to raise awareness and funds for FTD research and caregiver support.
And, I want to extend an extraordinary thank you to the caregivers who provided testimonials for the film!!!!
Enjoy the film:  https://youtu.be/DcFgD5HszdI

FTD Caregiver Support Group – Farmington, CT – Sunday, May 14th

Date/Time: Sunday, May 17th, 1:00-2:30pm

Location: Arden Courts Memory Care, 45 South Rd, Farmington, CT.

The CT FTD Foundation has a support group meeting for all caregiver’s and families/friends who have a loved one diagnosed with Frontotemporal Degeneration (FTD).

ArdenCourtThe support group meetings are a chance for everyone to share their experiences and express concerns. It also gives a chance to share ideas that have worked for other caregivers going through the same experience. Meetings are informal. You are welcome to bring your loved one with FTD, Arden Courts will provide respite care in a separate room. Please just let us know in advance if your loved one will attend.

Meetings are the third Sunday of every month at Arden Courts Memory Care, 45 South Rd, Farmington, CT. Time: 1:00pm – 2:30pm. Hosted by the CT FTD Foundation, meetings are free. For more information contact info@ctftdfoundation.org.

Caregiver Support Group at the Norwalk Senior Center – May 14th

Date: May 14th, 10:30 to 11:30am

Location: Norwalk Senior Center, 11 Allen Road, Norwalk

The Caregiver Support Group at the Norwalk Senior Center is for caregivers of family members or friends diagnosed with Alzheimer’s, Parkinson’s or Dementia.

The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information that NSC Photomight be helpful. Meetings are friendly and informal. Occasionally there are themes and guest speakers.

Meetings are on the second and fourth Thursdays of the month. At the first meeting of the month, there are usually Dementia Care Specialists from Wilton Meadows who provide activities for loved ones while caregivers meet. Please call to confirm before bringing your loved one.

Hosted by Lynn Westfield, the group is free and open to all. Membership in the Senior Center is not required.

For more information or if you are interested in participating, please call Lynn at (203) 847-3115 ext.108 or send an email to her at mow@norwalksc.org.