AFTD Kids and Teens Web Site

Hearing two people in the NYC support group I go to, mothers who have young children and are struggling with what to tell  them, got me to post again this info re the AFTD web site developed for kids and teens. Teens web

“It is designed to be a nurturing, understanding and safe environment for your kids to visit to read about FTD, find coping strategies, engage around positive activities and hear from other kids who know FTD firsthand. We hope that they will feel less isolated and more empowered by visiting the site and finding they are not alone in their experiences with FTD.”

“Using the iPad with People with Dementia” Seminar

—A Free Dementia Education Seminar—

Monday, June 29, 2015

Arden Courts, 45 South Road, Farmington, CT

12:00 pm to 12:30 pm Registration
12:30 pm to 1:30 pm Lunch and Presentation

June 29 - Arden - iPad SeminarKeeping a person with dementia engaged in activities can be very challenging. Ed Fitzgerald, a technology consultant whose wife is living with Frontotemporal Degeneration, looked for ways to use technology to help her.

After some trial and error, he used the iPad and created a home screen of activities combining, apps, links, games, videos, pictures and more, which he uses when they are together.

During this seminar, Ed will demonstrate how he uses the iPad, the process by which he created a customized set of activities that are of interest to his wife and advice on how to proceed if someone is interested in pursuing it with their loved one.

Seating is limited, so make your reservation early. Adult day care will be provided by qualified staff. Please ask for this service when making your reservation.

RSVP by calling 860-677-4060 or e-mailing

CT FTD Support Group Meeting featuring Dr. Brett Steinberg

Courtyard-003From the CT FTD:

“Just a quick note that our June support group meeting is moved from June 21st (Father’s Day) to June 28th same time and place, 1pm to 2:30 pm at Arden Courts, 45 South Rd in Farmington, CT. We will also have Dr. Brett Steinberg, neuropsychologist, to answer questions anyone may have that day. Dr. Steinberg is a board certified neuropsychologist who specializes in neurological and psychiatric disorders of adulthood, old age, and adolescence.

The support group meetings are a chance for everyone to share their experiences and express concerns. It also gives a chance to share ideas that have worked for other caregivers going through the same experience. Meetings are informal.  You are welcome to bring your loved one with FTD, Arden Courts will provide respite care in a separate room.  Please just let us know in advance if your loved one will attend.”

Hosted by The CT FTD Foundation and meetings are free. For more information contact




The AFTD web site has links to stories, poems, blogs, books, written by caregivers and those with FTD.

AFTD Logo“Tremendous value resides in the first-person accounts of patients, caregivers and other family members confronting FTD. Not only can their writing provide insight into the clinical course of the disease, but personal stories also offer catharsis, validation and connection. They teach us ways to convert tragedy into purpose and inspire hope. We’re grateful for their generous expression.”

Find them at

Caregiver Support Group at the Norwalk Senior Center – June 11th

Date: June 11th, 10:30 to 11:30am

Location: Norwalk Senior Center, 11 Allen Road, Norwalk

The Caregiver Support Group at the Norwalk Senior Center is for caregivers of family members or friends diagnosed with Alzheimer’s, Parkinson’s or Dementia.

The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information thatNSC Photomight be helpful. Meetings are friendly and informal. Occasionally there are themes and guest speakers.

Meetings are on the second and fourth Thursdays of the month. At the first meeting of the month, there are usually Dementia Care Specialists from Wilton Meadows who provide activities for loved ones while caregivers meet. Please call to confirm before bringing your loved one.

Hosted by Lynn Westfield, the group is free and open to all. Membership in the Senior Center is not required.

For more information or if you are interested in participating, please call Lynn at (203) 847-3115 ext.108 or send an email to her at

Call for AFTD Pilot Research Grants

The AFTD is seeking grant applications that address basic science or clinical research questions in Frontotemporal Degeneration (FTD).

Brain-Scan-560x400These grants are intended to support early-career investigators and provide seed funds for new and creative ideas that address critical issues in FTD research.

The deadline for applications is July 31, 2015.

For more information, go to the AFTD web site.


From the Alzheimer’s web site:

“The Alzheimer’s Association is moving our awareness month from September to June. This new month will be called Alzheimer’s & Brain Awareness Month (ABAM).— a time to shine a purple light for the millions of individuals world-wide and all the family members and caregivers locally affected by Alzheimer’s disease.

June MonthWe need your help to honor those struggling with this disease every day by mobilizing friends, families, neighbors, co-workers and customers to help bring an end to Alzheimer’s disease. The time is now to commit to going purple during Alzheimer’s & Brain Awareness Month (ABAM). The end of Alzheimer’s starts now.”

Click here for ways you can participate.