The AFTD web site has links to stories, poems, blogs, books, written by caregivers and those with FTD.
“Tremendous value resides in the first-person accounts of patients, caregivers and other family members confronting FTD. Not only can their writing provide insight into the clinical course of the disease, but personal stories also offer catharsis, validation and connection. They teach us ways to convert tragedy into purpose and inspire hope. We’re grateful for their generous expression.”
Find them at www.theaftd.org/life-with-ftd/sharing-our-stories.