Nuclear transport problems linked to ALS and FTD

NIH-supported studies point to potential new target for treating neurodegenerative diseases

Three teams of scientists supported by the National Institutes of Health showed that a genetic mutation linked to some forms of amyotrophic lateral sclerosis (ALS) and frontotemporal degeneration (FTD) may destroy neurons by disrupting the movement of materials in and out of the cell’s nucleus, or command center where most of its DNA is stored. The results, published in the journals Nature and NatureNeuroscience, provide a possible strategy for treating the two diseases.

Read more.

Samuel I. Newhouse Foundation Awards Major Research Gift for FTD Biomarkers Initiative

From the PR Newswire:

biomarketNEW YORK, Oct. 6, 2015 /PRNewswire-USNewswire/ — On Thursday, October 1, before a hopeful crowd of more than 200 at One World Trade Center in New York City, the Samuel I. Newhouse Foundation, Inc. announced a $5.75 million gift to The Association for Frontotemporal Degeneration (AFTD) for a multi-year FTD Biomarkers Initiative.

Read more about the importance of biomarker research.

Dementia Caregiver Support Group at the Norwalk Senior Center

Date/Time: October 22nd, 10:30 to 11:30am

Location: Norwalk Senior Center, 11 Allen Road, Norwalk

The Dementia Caregiver Support Group at the Norwalk Senior Center is for caregivers of family members or friends diagnosed with Dementia caused by Alzheimer’s, Frontotemporal Degeneration (FTD) or other conditions or diseases.

The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information thatNSC Photo might be helpful. Meetings are friendly and informal. Occasionally there are themes and guest speakers.

If you would like to bring your loved one, activities will be provided by Wilton Meadows.

Membership in the Senior Center is not required.

For more information or if you are interested in participating, please call Lynn at (203) 847-3115 ext.108 or send her an email at

FTD Caregiver Support Group Meeting

Date/Time: Sunday, October 18th, 1:00-2:30pm

Location: Arden Courts Memory Care, 45 South Rd, Farmington, CT.

The CT FTD Foundation has a support group meeting for all caregiver’s and families/friends who have a loved one diagnosed with Frontotemporal Degeneration (FTD).

Courtyard-003The support group meetings are a chance for everyone to share their experiences and express concerns. It also gives a chance to share ideas that have worked for other caregivers going through the same experience. Meetings are informal. You are welcome to bring your loved one with FTD, Arden Courts will provide respite care in a separate room. Please just let us know in advance if your loved one will attend.

Meetings are the third Sunday of every month at Arden Courts Memory Care, 45 South Rd, Farmington, CT. Time: 1:00pm – 2:30pm. Hosted by the CT FTD Foundation, meetings are free. For more information contact

Fearless Caregiver Conference takes place on November 5 in New Haven

Mark your calendar! …. The Fearless Caregiver Conference takes place on November 5 in New Haven. The conference provides practical information, advice and support for those caring for loved ones. It is designed to help attendees receive hands-on advice for his or her caregiving challenges.

ILogo’ve gone three times, found it very valuable.

This year I’ll be there as an exhibitor, demonstrating how caregivers can use the iPad with people with dementia. Check it out at

Caregivers can attend at no charge, but free tickets are limited. Get yours now.

AFTD USA kick-off event at the World Trade Center

AFTD hosted the kick-off event, at the World Trade Center on Thursday, October 1st, for the United States of America’s participation in 2015 World FTD Awareness Week. View videos that were some of those which played during the evening and Video graphichelped underscore the importance of AFTD’s mission: to  improve the quality of life of people affected by FTD and drive research to a cure.

The New York Times includes a full-page ad to raise FTD awareness

The first ever World FTD Awareness Week starts today! 
The New York Times includes a full-page ad to raise FTD awareness

New York Times full-page ad to raise FTD awareness

To commemorate the week, the AFTD announced that the print version of today’s New York Times includes a full-page ad to raise FTD awareness in the front section. In the NYC edition, it’s on pg. 15.

The AFTD created a page on their web site to accompany the ad: NY Times Ad Page

“Using the iPad with a Person who has Dementia” Seminar Tomorrow at Arden Courts in Avon, CT

I’ll be talking about my experience as a caregiver using the iPad to engage and communicate with my wife, at Arden Courts in Avon tomorrow, October 3, noon to 1:30. They will be providing lunch.

iPad Seminat Flyer LogoHere is a description:

“Using the iPad with a Person who has Dementia”

Keeping a loved one with dementia engaged in activities is very challenging for caregivers.

Ed Fitzgerald, a technology consultant whose wife is living with Frontotem-poral Dementia, looked for ways to use technology to help her. After some trial and error, he began using the iPad and created a home screen of activities combining, apps, links, games, videos, pictures and more, which he uses when they are together.

During this seminar, Ed will demonstrate how he uses the iPad, the process by which he created a customized set of activities that are of interest to his wife and offer advice on how to proceed if someone is interested in pursuing it with their loved one.

He talks about getting other family members involved and the benefits to both the loved one and caregiver. While he uses an iPad, some of what he talks about applies to a Kindle and Nook as well.

Click here for a PDF flyer.