The FTD seminar sponsored by the CT FTD Foundation and hosted by the River House Adult Day Center in Cos Cob was a success. Thirty five health care professionals, including some family caregivers, attended the event and there were more on the waiting list once registration was closed.
The featured speakers were Dr. Edward (Ted) Huey, who specializes in FTD at Columbia University Medical Center and Jill Goldman, MS, MPhil, CGC, Senior Staff Associate and Genetic Counselor at Columbia University Medical Center. Their presentation “Diagnosing Frontotemporal Degeneration, the Dementia No One Knows About” described FTD, its symptoms and behaviors, how the disease differs from Alzheimer’s and the role genetics play in diagnosis and assessing hereditary risk within a family.
The mission of the Connecticut Frontotemporal Dementia Foundation is to promote the funding necessary for research in finding the cause, therapies, and cures for FTD; support those diagnosed with FTD along with their families and caregivers; educate health professionals so that they have the knowledge and skills to work with FTD patients and families; advocate with Public Officials to provide adequate and appropriate programs and services.
The River House’s mission is to support and enrich the quality of life for seniors living with age-related needs and impairments in a safe and nurturing environment by providing customized day-time programs and services that stimulate intellectual, physical and emotional well-being, professional monitoring of health and personal care needs and counsel and peace of mind for caregivers and families.
The Association for Frontotemporal Degeneration works to improve the quality of life of people affected by FTD and drive research to a cure. They promote and fund research toward diagnosis, treatment and a cure; Stimulate greater public awareness and understanding; Provide information and support to those directly impacted; Promote and provide education for healthcare professionals; Advocate for research and appropriate, affordable services.