February 2016 FTD / Dementia Caregiver Support Group Meetings


Dementia Caregiver Support, including FTD

Dates: Thursday, February 11th and 25th, 10:30am to 11:30am

The Dementia Caregiver Support Group at the Norwalk Senior Center is for caregivers of family members or friends diagnosed with Dementia caused by Alzheimer’s, Frontotemporal Degeneration (FTD) or other conditions or diseases.

The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information thatNSC Photo might be helpful. Meetings are friendly and informal. Occasionally there are themes and guest speakers.Membership in the Senior Center is not required.

For more information or if you are interested in participating, please call Lynn at (203) 847-3115 ext.108 or send her an email atmow@norwalksc.org.


FTD Caregiver Support Group

Dates: Wednesday, February 3rd and 17th, 4:30pm to 5:45pm

360 LevMeeting Location : Alzheimer’s Disease and Related Disorders,
New York City, Inc.
 (formerly the NYC Chapter of the Alzheimer’s Association) 360 Lexington Ave., 3rd Floor, New York, NY. Two blocks from Grand Central Terminal.

Facilitator : Jill Goldman, MS, MPhil, CGC  – 212-305-7382 – JG2673@cumc.columbia.edu

Please contact Jill if you are interested in attending.

Meets: Twice Monthly, First and Third Wednesday, 4:30pm to 5:45pm


FTD Caregiver Support Group

Date: Sunday, February 21st, 1:00-2:30pm

Location: Arden Courts Memory Care, 45 South Rd, Farmington, CT. A little over an hour from the Norwalk area.

The CT FTD Foundation has a support group meeting for all caregiver’s and families/friends who have a loved one diagnosed with Frontotemporal Degeneration (FTD).

Courtyard-003The support group meetings are a chance for everyone to share their experiences and express concerns. It also gives a chance to share ideas that have worked for other caregivers going through the same experience. Meetings are informal. You are welcome to bring your loved one with FTD, Arden Courts will provide respite care in a separate room. Please just let us know in advance if your loved one will attend.

Meetings are the third Sunday of every month at Arden Courts Memory Care, 45 South Rd, Farmington, CT. Time: 1:00pm – 2:30pm. Hosted by the CT FTD Foundation, meetings are free. For more information contact info@ctftdfoundation.org.

FTD Economic Burden Study

From the AFTD web site: “The first study of the economic burden of FTD launched this week. Conducted by Dr. James Galvin, the study will quantify the economic burden FTD imposes on a family. Together, we can use the results to advocate for better and more appropriate services, and secure additional research funding. The study is being conducted through a confidential, secure online survey. Completing it will take approximately 1 hour, during which you will be contributing significantly to the fight against FTD!”

FTD Seminar in New York City

Frontotemporal Degeneration (FTD): The Dementia No One Knows About

  • Symptoms and behaviors of FTD
  • How FTD differs from Alzheimer’s
  • What your healthcare professionals will look for, to pinpoint the disease
  • How genetics plays a role in FTD


Dr. Edward Huey, Assistant Professor of Psychiatry & NeuFlyer tnrology, Columbia University


Jill Goldman, MS, MPhil, CGC, Senior Staff Associate & Genetic Counselor, Columbia University

Registration required. See March 14 FTD Seminar Flyer for details.


CT FTD Foundation 5th Annual Wine Tasting

The CT FTD Foundation 5th Annual Wine Tasting will be held on Saturday, March 12th, 2016 at the DoubleTree by Hilton in Bristol.  We hope we have finally found a modern venue that can accommodate our growing needs and help us deliver a fabulous event.


Tickets are $35.00 in advance, $40 day of event and will include appetizers, wine & beer samples.

Raffle prizes and silent auction items will also be at the event as well.

We look forward to seeing everyone there!

Purchase tickets online

Print Flyer


AFTD’s Annual Education Conference

AFTD’s annual Education Conference provides opportunities for all members of the FTD community – researchers, medical professionals, AFTD Conf 2016caregivers and persons living with FTD – to meet in person, share resources and learn about the latest developments in FTD research. The program will offer new opportunities for participation by people living with a diagnosis of FTD.


Registration: Opens in January 2016.


Minneapolis on May 13th, 2016 at the DoubleTree by Hilton Hotel Minneapolis-Park Place.

More info at http://www.theaftd.org/newsroom/aftd-2016-education-conference

CT Alzheimer’s Association Dementia Education Conference

The Alzheimer’s Association Connecticut Chapter 19th Annual Statewide Dementia Education Conference will be held on April 7, 2016 at the Crowne Plaza Hotel in Cromwell, CT.

logoMark your calendar. Details to follow. I’ve attended and found it to be very worthwhile. There was an FTD seminar at a previous conference, will have to wait and see if there is this year when the agenda is published.