AFTD Shamrock Shuffle 5K Fund Raiser

AFTD is forming a team to participate in the Shamrock Shuffle 5K on March 12th, bringing greater FTD awareness to the surrounding Connecticut area, while also raising funds to AFTD Teamhelp people affected by FTD across the country. This will be an outstanding opportunity for members of the local FTD community to meet and spend time together.


Email for more information about the race, and to say you’ll be there.

You can also visit AFTD’s Givezooks page for registration information, and instructions on how to create a fundraiser.

Date: March 12th
Time: 10:00 AM
Location: Polk School, 437 Buckingham St., Oakville, CT

Alzheimerʼs Association Annual Education Conference

The Alzheimerʼs Association, Connecticut Chapter, is holding its 19th Annual Education Conference on April 7th in Cromwell, CT. Details.

logo 2According to their web site, “This full-day conference is designed for both professionals and family caregivers. Our aim is to share best practices and creative interventions for the care, treatment and preservation of the quality of life of persons with Alzheimerʼs and related dementias.”

I’ve been to the conference three times and have to found it to be very helpful. Would highly recommend it for caregivers.

There is a session on FTD. “This session will review the symptoms, diagnostic criteria and key points about providing clinical care for patients with behavioral variant frontotemporal dementia and primary progressive aphasia.” The presenter is Scott M. McGinnis, M.D., Massachusetts General Hospital Frontotemporal Disorders Unit.


Guide for Managing a New FTD Diagnosis

New FTD Guide

This booklet reflects the experience of thousands of individuals and families who have faced a diagnosis of FTD and the professionals who work with them.

You will find suggestions for how to adjust to the changes in your life and build confidence in the decisions you make.

Developing a strategic approach to the disease will help you live today fully and prepare for the future.

Download PDF

CT FTD Foundation 5th Annual Wine Tasting

The CT FTD Foundation 5th Annual Wine Tasting will be held on Saturday, March 12th, 2016 at the DoubleTree by Hilton in Bristol.  We hope we have finally found a modern venue that can accommodate our growing needs and help us deliver a fabulous event.


Tickets are $35.00 in advance, $40 day of event and will include appetizers, wine & beer samples.

Raffle prizes and silent auction items will also be at the event as well.

We look forward to seeing everyone there!

Purchase tickets online

FTD Seminar in New York City

Frontotemporal Degeneration (FTD): The Dementia No One Knows About

  • Symptoms and behaviors of FTD
  • How FTD differs from Alzheimer’s
  • What your healthcare professionals will look for, to pinpoint the disease
  • How genetics plays a role in FTD


Dr. Edward Huey, Assistant Professor of Psychiatry & NeuFlyer tnrology, Columbia University


Jill Goldman, MS, MPhil, CGC, Senior Staff Associate & Genetic Counselor, Columbia University

Registration required. See March 14 FTD Seminar Flyer for details.

AFTD’s 2016 “With Love” Campaign

AFTD’s With Love Campaign is online and focused around Valentine’s Day. They ask fundraisers to create Givezooks! pages featuring their stories of love that has endured the Colaborate-White-2016-503x240trials of FTD, and share them with their friends and family to raise awareness and funds.

Read the other stories already posted for the campaign, such as this one from Team Alice: