A new FTD Caregiver Support Group is being formed and the first meeting will be on March 9th, at the River House Adult Day Center in Cos Cob., 6:00-7 :15pm. Contact Ed Fitzgerald if you are interested in joining the group.
AFTD is forming a team to participate in the Shamrock Shuffle 5K on March 12th, bringing greater FTD awareness to the surrounding Connecticut area, while also raising funds to help people affected by FTD across the country. This will be an outstanding opportunity for members of the local FTD community to meet and spend time together.
Email firstname.lastname@example.org for more information about the race, and to say you’ll be there.
You can also visit AFTD’s Givezooks page for registration information, and instructions on how to create a fundraiser.
The Alzheimerʼs Association, Connecticut Chapter, is holding its 19th Annual Education Conference on April 7th in Cromwell, CT. Details.
According to their web site, “This full-day conference is designed for both professionals and family caregivers. Our aim is to share best practices and creative interventions for the care, treatment and preservation of the quality of life of persons with Alzheimerʼs and related dementias.”
I’ve been to the conference three times and have to found it to be very helpful. Would highly recommend it for caregivers.
There is a session on FTD. “This session will review the symptoms, diagnostic criteria and key points about providing clinical care for patients with behavioral variant frontotemporal dementia and primary progressive aphasia.” The presenter is Scott M. McGinnis, M.D., Massachusetts General Hospital Frontotemporal Disorders Unit.
This booklet reflects the experience of thousands of individuals and families who have faced a diagnosis of FTD and the professionals who work with them.
You will find suggestions for how to adjust to the changes in your life and build confidence in the decisions you make.
Developing a strategic approach to the disease will help you live today fully and prepare for the future.
Tickets are $35.00 in advance, $40 day of event and will include appetizers, wine & beer samples.
Raffle prizes and silent auction items will also be at the event as well.
We look forward to seeing everyone there!
Dr. Edward Huey, Assistant Professor of Psychiatry & Neurology, Columbia University
Jill Goldman, MS, MPhil, CGC, Senior Staff Associate & Genetic Counselor, Columbia University
Registration required. See March 14 FTD Seminar Flyer for details.
The AFTD released a new awareness video about FTD.
Watch and share it by email and social media #whoilove in any way you can: https://www.youtube.com/watch?v=dv2CUqGKgMA&feature=youtu.be
With your help, they can reach a wider audience and educate more people about this rare disease.
The Winter 2016 issue is now available. It includes an overview of PPA symptoms, and features tips and resources for maximizing communication as PPA progresses.
AFTD’s With Love Campaign is online and focused around Valentine’s Day. They ask fundraisers to create Givezooks! pages featuring their stories of love that has endured the trials of FTD, and share them with their friends and family to raise awareness and funds.
Read the other stories already posted for the campaign, such as this one from Team Alice: https://theaftd.givezooks.com/grassroots_fundraisers/for-alice-with-love-and-to-endftd