2016 FTD Education Day: From Care to Cure at the Westin in Waltham
Friday, April 29, 2016
FTD Unit clinicians and staff will provide families, caregivers, patients and industry professionals a day of education, inspiration and connections for our FTD community.
Details at bit.ly/FTDCareToCure2016.
Big turnout, great venue ….
From the CT FTD Foundation Facebook page:
“Thank you to everyone who came to our wine tasting. It was another wonderful night. We were honored to have Ben Freeman and Bridget Graham from The AFTD-Team there. Many thanks to DoubleTree by Hilton, everyone loved the venue and their staff was amazing!
Thank you also to those who couldn’t make it but made a donation. And thanks to all the companies who donated a raffle prize along with our friends and family who also contributed to the raffles.
You all play a role in what makes our foundation successful and that helps us educate others about FTD and allows us to raise money for research!”
Think it may be FTD? There is a clinical resource in New York City at the Taub Institute at Columbia University Medical Center. For information and appointments go to http://www.cumc.columbia.edu/dept/taub/res-frontotemporal.html
The Alzheimerʼs Association, Connecticut Chapter, is holding its 19th Annual Education Conference on April 7th in Cromwell, CT. Details.
There is a session on FTD. “This session will review the symptoms, diagnostic criteria and key points about providing clinical care for patients with behavioral variant frontotemporal dementia and primary progressive aphasia.” The presenter is Scott M. McGinnis, M.D., Massachusetts General Hospital Frontotemporal Disorders Unit.
The next meeting of the FTD Caregiver Support Group in Fairfield County is April 13th, at the River House Adult Day Center, 125 River Rd Ext, Cos Cob, CT, 6:00-7 :15pm.
Contact Ed Fitzgerald, via email, or call 203-803-0714, if you are interested in joining the group.
From the AFTD web site:
“This website provides a place where kids and teens can ask questions, find answers and share experiences with peers who are on this journey. Two sides of the website present information in an age appropriate way for children 4-12 and teens 13+. Children and teens are invited to submit their own poems, short stories, videos diaries and other creative works to the “Kids (Teens) Like Me” section of the website.”
Here is another memory loss related event that is taking place this weekend in Westport.
“The Saugatuck Congregational Church is joining forces with the Alzheimer’s Association to host a community-wide, ecumenical Christian worship service to which all are welcome. “God in the Now” is a service for individuals and families affected by memory loss. Those experiencing memory loss and their families, friends, and caregivers are encouraged to attend together.”
Sunday, March 13th – 3:00 PM – 4:00 PM
Saugatuck Congregational Church, UCC
On the Post Road in downtown Westport
245 Post Road East, Westport CT 06880 | t: 203-227-1261
I just found out about this today. It is open to the public.
Thursday, March 10, 2016 | 4:30pm – 6:30pm
Westport Center for Senior Activities
21 Imperial Avenue
Westport CT 06880
If you are not familiar with the movie ….
“Still Alice,” is a movie that gives us a rare window into the experience of living with Alzheimer’s disease—a glimpse of the inside looking out.
Dr. Alice Howland (Julianne Moore), a renowned linguistics professor, starts to forget words. When she receives a diagnosis of younger-onset Alzheimer’s disease, Alice and her family find their bonds thoroughly tested. Her struggle to stay connected to who she once was is frightening, heartbreaking and inspiring.
The screening is sponsored in part by the CT Chapter of the Alzheimer’s Association and representatives will be there for a discussion and to answer questions.