From the AFTD web site, links to:
Dementia Caregiver Support (not FTD specific)
Date: Thursday, April 28th, 10:30am to 11:30am
The Dementia Caregiver Support Group at the Norwalk Senior Center is for caregivers of family members or friends diagnosed with Dementia caused by Alzheimer’s, Frontotemporal Degeneration (FTD) or other conditions or diseases.
The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information that might be helpful. Meetings are friendly and informal. Occasionally there are themes and guest speakers. Membership in the Senior Center is not required.
For more information or if you are interested in participating, please call Lynn at (203) 847-3115 ext.108 or send her an email at email@example.com.
Celebrating Hope is the Alzheimer’s Association Connecticut Chapter’s premier benefit in lower Fairfield County.
Friday, April 29th, at the Delamar Greenwich Harbor and l’escale.
Keynote Speaker: B. Smith, restaurateur, magazine publisher, celebrity chef, and nationally known lifestyle maven who was diagnosed with early onset Alzheimer’s disease.
Details at https://www.501auctions.com/celebratinghope
From the Alzheimer’s web site: “Legal documents help ensure that the wishes of the person with dementia are followed as the disease progresses and make it possible for others to make decisions on behalf of the person when he or she no longer can.”
Plus you as the caregiver can then get access to finances and make other decisions that you might not have anticipated would have to be made.
I ran into that when the company I retired from changed the way they provided medical coverage, the health care company administering the plan insisted on speaking to my wife. I faxed over the POA and was then able to sign her up for her coverage.
Here we are 3 years later and just this past week had to use the POA on two occasions.
I almost waited too long. I remember being at the attorney’s office hoping she would be able to acknowledge what he was saying and sign her name.
My initial concern was not my wife wandering, although that did become an issue.
I was concerned about what if something happened to me while she was with me. We get into a car accident, I have a medical issue and am unconscious. She wouldn’t have been able to provide any information to emergency responders. So I signed both of us up and we both wore bracelets.
Her bracelet indicated she had a memory issue. Mine indicated I was a caregiver. Both had an 800 number to call and MedicAlert had our medical information and emergency contacts.
From the Alzheimer’s web site:
“a 24-hour nationwide emergency response service for individuals with Alzheimer’s or a related dementia who wander or have a medical emergency. They provide 24-hour assistance, no matter when or where the person is reported missing”. Go to AlzMedAlert.
While you can sign up online, I suggest calling and speaking with someone directly. I ran into problems with the web site when I tried to add mt bracelet to the order.
Here is a good source of information about dementia caregiving from the Alzheimer’s Association.
Go to AlzDementiaCare
The CT Chapter has a 24/7 helpline – 800-272-3900.
The AFTD educates physicians and healthcare professionals about frontotemporal degeneration (FTD ) and how to improve care for patients and their families through multidisciplinary collaboration and targeted initiatives.
They combine professional expertise with the experience of people with FTD and caregivers to focus on FTD-specific approaches to improving care.
For more information, visit their web site at www.theaftd.org/understandingftd/healthcare-professionals
The Penn Frontotemporal Degeneration Center, University of Pennsylvania, a good source of information for caregivers and for medical professionals.
Save the Date
The CT FTD Foundation will be hosting their 4th Annual Golf Tournament on August 19, 2016 at Lyman Orchards Golf Club in Middlefield, CT. Details will be posted on their website, Facebook page, and newsletters as the event gets closer. Contact them with any questions – firstname.lastname@example.org.
Friday, May 20, 2016 – 8 am – 4:30 pm
University of Pennsylvania – Smilow Center for Translational Research
The Penn Frontotemporal Degeneration Center is hosting a day-long conference for caregivers of persons with FTD and related conditions such as ALS and Corticobasal Degeneration.
Details at ftd.med.upenn.edu.