Guide for Managing a New Diagnosis of FTD

New Diag

You Are Not Alone
Overview of Frontotemporal Degeneration (FTD)
Learn About the Disease
Create Your Care Team
Legal and Financial Issues
Develop a Positive Daily Routine
Address Safety Issues
Gaining in Skills and Confidence
Research: The Key to Tomorrow

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Held every two years, the International Conference on Frontotemporal Dementias (ICFTD) provides the primary venue for the international synthesis, exchange and dissemination of research evidence related to FTD. Experts from diverse backgrounds share recent discoveries, insights and opinions.

August 31-September 2, 2016 in Munich, Germany.

The International FTD Caregiver Conference 2016 (held on September 1st), offered in conjunction with the ICFTD, provides a forum for discussion and an opportunity to promote International awareness for FTD. The Conference will highlight the urgent need for patient-oriented research and the development of patient care and support strategies.

For more information go to the conference website:

The AFTD is a Platinum Sponsor of the 10th ICFTD

FTD – When There Are Kids in the Home: Creating a Village of Support

The Partners in FTD Care Newsletter: A Care Scenario

FTD NEWSLThe stress put on families when a parent is diagnosed with FTD and have children at home is significant.

Residential and facility care staff have an opportunity to help the entire family cope by supporting the primary caregiver.

Providing information and resources for education, while offering comfort throughout all phases, is essential to ensure the health of the family and to the adjustment and well-being of individual members.

June is Brain Awareness Month!


Worldwide, 47 million people are living with Alzheimer’s
and other dementias.

Join the Alzheimer’s Association in going purple and
raising awareness this June.

The more people know about Alzheimer’s, the more action we inspire.

The Treat FTD Fund

The Treat FTD Fund is a joint program of AFTD and the ADDF, will accelerate clinical trials for FTD over the next decade. And it has the potential to advance treatments for other neurodegenerative diseases, such as Alzheimer’s, ALS and Parkinson’s.

The Lauder Foundation, Leonard A. Lauder, President, and Ronald S. Lauder have jointly committed $5 million, which will be combined with $5 million from the Samuel I. Newhouse Foundation.

The Treat FTD Fund will build on recent successes of both foundations in early-stage drug discovery and biomarker development that make clinical trials possible and increase their odds of success. A “Request for Proposals,” expected to be announced this summer, will be available at and

FTD Caregiver Support Group Meeting in NYC

Next meeting is June 15th

360 LevMeeting Location : CaringKind, (formerly the NYC Chapter of the Alzheimer’s Association) 360 Lexington Ave., 3rd Floor, New York, NY. Two blocks from Grand Central Terminal.

Facilitator : Jill Goldman, MS, MPhil, CGC  – 212-305-7382 –

Please contact Jill if you are interested in attending.

Meets: Twice Monthly, First and Third Wednesday, 4:30pm to 5:45pm

“Using the IPad with a Person Living with Dementia” Seminar for Caregivers

June 15th at the Alzheimer’s CT Chapter HQ in Southington, CT

ImageWorkshop Wednesdays – Alzheimer’s Association CT Chapter, every 3rd Wednesday of the month, a series of informational workshops on dementia.

Speaker: Ed Fitzgerald, Caregiver and Technology Consultant, Technology for Caregiving, LLC.

Ed Fitzgerald, whose wife is living with Frontotemporal Dementia, looked for ways to use technology to help her. During this workshop Ed, will demonstrate an approach he developed to use the iPad with a person with dementia involving a process he created to customize activities of interest. While he uses an iPad, some of what he talks about applies to a Kindle and Nook as well.

Details and Registration at Workshop Wednesday June 15