You Are Not Alone
Overview of Frontotemporal Degeneration (FTD)
Learn About the Disease
Create Your Care Team
Legal and Financial Issues
Develop a Positive Daily Routine
Address Safety Issues
Gaining in Skills and Confidence
Research: The Key to Tomorrow
Download the PDF
Held every two years, the International Conference on Frontotemporal Dementias (ICFTD) provides the primary venue for the international synthesis, exchange and dissemination of research evidence related to FTD. Experts from diverse backgrounds share recent discoveries, insights and opinions.
August 31-September 2, 2016 in Munich, Germany.
The International FTD Caregiver Conference 2016 (held on September 1st), offered in conjunction with the ICFTD, provides a forum for discussion and an opportunity to promote International awareness for FTD. The Conference will highlight the urgent need for patient-oriented research and the development of patient care and support strategies.
For more information go to the conference website: www.icftd2016.de
The AFTD is a Platinum Sponsor of the 10th ICFTD
The stress put on families when a parent is diagnosed with FTD and have children at home is significant.
Residential and facility care staff have an opportunity to help the entire family cope by supporting the primary caregiver.
Providing information and resources for education, while offering comfort throughout all phases, is essential to ensure the health of the family and to the adjustment and well-being of individual members.
The Treat FTD Fund is a joint program of AFTD and the ADDF, will accelerate clinical trials for FTD over the next decade. And it has the potential to advance treatments for other neurodegenerative diseases, such as Alzheimer’s, ALS and Parkinson’s.
The Lauder Foundation, Leonard A. Lauder, President, and Ronald S. Lauder have jointly committed $5 million, which will be combined with $5 million from the Samuel I. Newhouse Foundation.
The Treat FTD Fund will build on recent successes of both foundations in early-stage drug discovery and biomarker development that make clinical trials possible and increase their odds of success. A “Request for Proposals,” expected to be announced this summer, will be available at www.alzdiscovery.org and www.theaftd.org.
Next meeting is June 15th
Meeting Location : CaringKind, (formerly the NYC Chapter of the Alzheimer’s Association) 360 Lexington Ave., 3rd Floor, New York, NY. Two blocks from Grand Central Terminal.
Facilitator : Jill Goldman, MS, MPhil, CGC – 212-305-7382 – JG2673@cumc.columbia.edu
Please contact Jill if you are interested in attending.
Meets: Twice Monthly, First and Third Wednesday, 4:30pm to 5:45pm
Many doctors and care facilities do not have experience caring for patients with FTD.
It may be helpful to download this Primer on Frontotemporal Dementia and take it to your next visit.
From the UCSF Memory and Aging Center.
June 15th at the Alzheimer’s CT Chapter HQ in Southington, CT
Workshop Wednesdays – Alzheimer’s Association CT Chapter, every 3rd Wednesday of the month, a series of informational workshops on dementia.
Speaker: Ed Fitzgerald, Caregiver and Technology Consultant, Technology for Caregiving, LLC.
Ed Fitzgerald, whose wife is living with Frontotemporal Dementia, looked for ways to use technology to help her. During this workshop Ed, will demonstrate an approach he developed to use the iPad with a person with dementia involving a process he created to customize activities of interest. While he uses an iPad, some of what he talks about applies to a Kindle and Nook as well.
Details and Registration at Workshop Wednesday June 15
Educational and Training Opportunities offered by CaringKind, formerly the Alzheimer’s Association of NYC. Convenient to get to from Fairfield County, located a couple of blocks form Grand Central Terminal.
Description and schedules at www.caringkindnyc.org/education/
A Canadian collaboration to develop educational materials for children and teens living with someone who has dementia.
“When Dementia is in the House”