Second Annual World FTD Awareness Week

The second annual World FTD Awareness Week will be held September 25, 2016—October 2, 2016. Various activities and events will be planned by the international community.

In addition, the AFTD grassroots campaign, Food for Thought, will also work to raise awareness and funds to fight FTD during this same period.

Stay tuned for more information.

Bringing crucial patient and family perspectives about FTD to physicians in training

A chapter about the family’s perspective is in the medical text book Hodge’s Frontotemporal Dementia, 2nd edition. 

When approached by AFTD Medical Advisory Council member, Brad Dickerson, M.D., AFTD’s Executive Director, Susan L-J Dickinson, agreed that it was time a medical text book focused a chapter on how FTD impacts the family unit.

A first for AFTD and theHodges medical field, the text will bring crucial patient and family perspectives to physicians in training, improving diagnosis and care in the future.

Find out more here:

What is Hodge’s Frontotemporal Dementia, 2nd edition?

“It provides an in-depth and expert synthesis of the status of our knowledge of FTD and related syndromes, the content includes chapters reviewing clinical, neuropsychiatric, neuropsychological, imaging, and other features of FTD and multidisciplinary approaches to patient management. Essential reading for specialist and generalist neurologists, psychiatrists, geriatricians, neuropsychologists, neuropathologists, and basic scientists in relevant fields.”

A Caregiver’s Guide to Understanding Dementia Behaviors

From the Family Caregiver Alliance National Center on Caregiving

A Caregiver’s Guide to Understanding Dementia Behaviors

Ten Tips for Communicating with a Person with Dementia

Handling Troubling Behavior 




Repetitive Speech or Actions (Perseveration)





Additional Problem Areas

Click here to go to the article. 

FTD Caregiver Support Group Meeting, July 17th

Date: Sunday, July 17th, 1:00-2:30pm 

Location: Arden Courts Memory Care, 45 South Rd, Farmington, CT.

The CT FTD Foundation has a support group meeting for all caregiver’s and families/friends who have a loved one diagnosed with Frontotemporal Degeneration (FTD).

Courtyard-003The support group meetings are a chance for everyone to share their experiences and express concerns. It also gives a chance to share ideas that have worked for other caregivers going through the same experience. Meetings are informal.

You are welcome to bring your loved one with FTD, Arden Courts will provide respite care in a separate room. Please just let us know in advance if your loved one will attend.

Meetings are the third Sunday of every month at Arden Courts Memory Care, 45 South Rd, Farmington, CT. Time: 1:00pm – 2:30pm. Hosted by the CT FTD Foundation, meetings are free. For more information contact

“His Neighbor Phil”, a film about caregiving and early onset dementia, screening in Westport

There will be a screening of “His Neighbor Phil” at Christ and Holy Trinity Church in Westport this coming Sunday, July 10th, at 6pm.

F;yerIf you aren’t familiar with the movie, it’s about a man whose wife has early-onset Alzheimer’s and how her diagnosis affects her family, the community and the caregivers.

I will be seeing it myself for the first time, I have had people recommend it.

Here is the plot summary from IMDB.

The movie is about 1 hour and 30 min, followed by a panel discussion. I’m on the panel, along with someone from the Alzheimer’s  Assoc and from Synergy Home Care.

See this flyer for more details and how to RSVP.