Time for a break

This will be my last post for awhile. The links along the right side bar of the page should still be helpful.

Hope to be back at some point in the future.

Ed.

 

CaringKind’s First Annual Technology Fair in NYC

I will be one of the exhibitors at the Fair, demonstrating the approach I developed for using the iPad to engage a person with dementia. www.TechForCaregiving.com

Here is an invitation from CaringKind if you are interested in attending.

“Recently there have been some exciting technological advances that may enhance the quality of life for people with dementia and their care partners.  Please join us on Wednesday, April 26th as over a dozen exhibitors showcase their ideas and products at the opening night of CaringKind’s first annual Technology Fair. Space is limited.

To register, please click on the link below or copy and paste the following address into your browser:

April 26, 6pm-9pm https://www.surveymonkey.com/r/techfairday1

If you are unable to attend on the opening night, please consider visiting the Technology Fair on either Thursday, April 27 between 4pm and 7pm or Friday, April 28, between 1pm and 4pm. Please note that although you may arrive at any time during those hours, registration is required via the links below:

April 27, 4pm-7pm https://www.surveymonkey.com/r/techfairday2

April 28, 1pm-4pm https://www.surveymonkey.com/r/techfairday3

Thank you and we hope to see you at the Fair!”

For additional information or questions, contact info@caringkindnyc.org

FTD FOR HEALTHCARE PROFESSIONALS

AFTD’s Partners in FTD Care is an on-going initiative to educate professionals about FTD and develop best practices in community care.  Partners in FTD Care materials are partdeveloped by a committee of clinical nurse educators, social workers, and family and professional caregivers with contributions from specialists in speech-language pathology, occupational therapy, hospice.  Partners in FTD Care has two  elements:

  • Introductory Educational Materials
  • Quarterly e-newsletters featuring case studies in FTD

This is information that you can share with an MD as you are going through the diagnostic process if there is uncertainly on the part of the MD.

For more information go to http://www.theaftd.org/understandingftd/healthcare-professionals

Rescheduled – FTD Seminar for Caregivers and Professionals in Bethel, CT

Cancelled due to the snow storm on March 14th, Maplewood at Stony Hill in Bethel has reshceduled its educational seminar for both professionals and personal caregivers about FTD.

During this educational session you will learn about the differences between Frontotemporal Dementia (FTD) and other forms of dementia, the subtypes of FTD, common behavioral expressions and strategies for managing behaviors.

DATE: Wednesday, April 26th at 4:30 PM – 7:00 PM

LOCATION: Maplewood at Stony Hill, 46 Stony Hill Road, Bethel, Connecticut

For more information or to RSVP, contact Eileen Duggan at 914-534-1126 or at eduggan@maplewoodsl.com.

“Using the iPad to Reach People with Dementia” – April 6, 2017, CT Chapter Alzheimer’s Education Conference

I’ll be presenting and demonstrating the approach I developed to use the iPad with my ipad-diane-arden-aug2015-03wife at the Alzheimer’s Education Conference on April 6th in Cromwell,  CT. It is an accredited course for healthcare professionals and open to family caregivers.

Description:

Ed Fitzgerald’s wife Diane was diagnosed with Frontotemporal Degeneration (FTD) in 2010. Using his technology experience, he developed an approach to using the iPad to keep her engaged and mentally stimulated, which is what he will talk about here today.

During this seminar, Ed will talk about how he uses the iPad with his wife and the process by which he created a customized set of activities that are of interest to his wife. He will offer advice on how to proceed if someone is interested in pursuing it with their loved one.

He also talks about getting other family members involved and the benefits to both the loved one and caregiver. While he uses an iPad, some of what he talks about applies to other tablet devices as well. You don’t have to be a techie to benefit from this seminar.

  • iPad Demonstration
  • Examples of activities using the iPad
  • Apps recommended for those with dementia, games, videos, audio, music, news, photos, etc.
  • The effect on behavior, agitation, feelings, communication, participation
  • How to get started, identifying interests, getting educated, finding the right apps
  • Guidance on how to use the iPad effectively and what doesn’t work
  • How it can be used in a group setting in an assisted living facility, nursing home or senior center.

Register at the Alzheimer’s Education web site.

Click here for more information about the conference.

Effective Communications Strategies to use with a Person who has Dementia

The Effective Communications Strategies program explores how communication takes place when someone has Alzheimer’s disease: learn to decode verbal and behavioral messages and identify strategies to help connect and communicate at each stage of disease. Join Shanon Jordan, South Western Regional Director of the CT Alzheimer’s Association, on March 29, 2017 from 12:00-1:00 pm at Brookdale Wilton, 96 Danbury Road, Wilton. Contact Christy Perone, 203.761.8999 to register.

Meeting with Rep. Jim Himes regarding caregiving

I was invited by the CT Chapter of the Alzheimer’s Association to meet with Rep. Jim Himes along with three other caregivers. The objective of the meeting was to help him understand the challenges of being a caregiver and raise his awareness and get his support for two pending pieces of legislation.

We all had some powerful stories to tell and I think we had some impact on him. He listened patiently and asked some good questions. After breaking, he continued to talk one on one with a couple of us. Two of us were FTD caregivers.

There are two bills in Congress that address the needs of caregivers that he recently signed on for as a cosponsor.

  • Recognize, Assist, Include, Support, and Engage Family Caregivers Act of 2015 or the RAISE Family Caregivers Act – H.R. 3099
    This bill directs the Department of Health and Human Services (HHS) to develop, maintain, and periodically update a National Family Caregiving Strategy. HHS shall convene a Family Caregiving Advisory Council to advise it on recognizing and supporting family caregivers. Read more.
  • PCHETA: Palliative Care and Hospice Training Act – H.R. 3119
    This bill amends the Public Health Service Act to require the Department of Health and Human Services (HHS) to award grants or contracts for Palliative Care and Hospice Education Centers. These Centers must improve the training of health professionals in palliative care and establish traineeships for individuals preparing for advanced education nursing degrees, social work degrees, or advanced degrees in physician assistant studies in palliative care. Read more.

We should all take the opportunity to speak to our representatives when they hold their town hall, community meetings, write to them, and make sure that caregiving is a topic that they hear about and understand.

 

FTD Seminar for Caregivers and Professionals in Bethel, CT

mwstnyhill_dementiaseries-rebekah-wilsonMaplewood at Stony Hill in Bethel is hosting an educational seminar for both professionals and personal caregivers about FTD.

During this educational session you will learn about the differences between Frontotemporal Dementia (FTD) and other forms of dementia, the subtypes of FTD, common behavioral expressions and strategies for managing behaviors.

DATE: Tuesday, March 14TH, 4:30 PM – 7:00 PM

LOCATION: Maplewood at Stony Hill, 46 Stony Hill Road, Bethel, Connecticut

For more information or to RSVP, contact Eileen Duggan at 914-534-1126 or at eduggan@maplewoodsl.com.

CT FTD Foundation Wine Tasting Fundraiser

6th Annual Wine Tasting – The CT FTD Foundation will be hosting their annual wine tasting on March 11, 2017 at the DoubleTree Hilton in Bristol.  They had a wonderful experience last year with the venue and are excited to have their event there again in 2017.  Tickets are $35 ($40 day of event) which can be bought online or by check.  Please contact them with any questions, info@ctftdfoundation.org.

 

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