“Using the iPad to Reach People with Dementia” – April 6, 2017, CT Chapter Alzheimer’s Education Conference

I’ll be presenting and demonstrating the approach I developed to use the iPad with my ipad-diane-arden-aug2015-03wife at the Alzheimer’s Education Conference on April 6th in Cromwell,  CT. It is an accredited course for healthcare professionals and open to family caregivers.

Description:

Ed Fitzgerald’s wife Diane was diagnosed with Frontotemporal Degeneration (FTD) in 2010. Using his technology experience, he developed an approach to using the iPad to keep her engaged and mentally stimulated, which is what he will talk about here today.

During this seminar, Ed will talk about how he uses the iPad with his wife and the process by which he created a customized set of activities that are of interest to his wife. He will offer advice on how to proceed if someone is interested in pursuing it with their loved one.

He also talks about getting other family members involved and the benefits to both the loved one and caregiver. While he uses an iPad, some of what he talks about applies to other tablet devices as well. You don’t have to be a techie to benefit from this seminar.

  • iPad Demonstration
  • Examples of activities using the iPad
  • Apps recommended for those with dementia, games, videos, audio, music, news, photos, etc.
  • The effect on behavior, agitation, feelings, communication, participation
  • How to get started, identifying interests, getting educated, finding the right apps
  • Guidance on how to use the iPad effectively and what doesn’t work
  • How it can be used in a group setting in an assisted living facility, nursing home or senior center.

Register at the Alzheimer’s Education web site.

Click here for more information about the conference.

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Effective Communications Strategies to use with a Person who has Dementia

The Effective Communications Strategies program explores how communication takes place when someone has Alzheimer’s disease: learn to decode verbal and behavioral messages and identify strategies to help connect and communicate at each stage of disease. Join Shanon Jordan, South Western Regional Director of the CT Alzheimer’s Association, on March 29, 2017 from 12:00-1:00 pm at Brookdale Wilton, 96 Danbury Road, Wilton. Contact Christy Perone, 203.761.8999 to register.

Meeting with Rep. Jim Himes regarding caregiving

I was invited by the CT Chapter of the Alzheimer’s Association to meet with Rep. Jim Himes along with three other caregivers. The objective of the meeting was to help him understand the challenges of being a caregiver and raise his awareness and get his support for two pending pieces of legislation.

We all had some powerful stories to tell and I think we had some impact on him. He listened patiently and asked some good questions. After breaking, he continued to talk one on one with a couple of us. Two of us were FTD caregivers.

There are two bills in Congress that address the needs of caregivers that he recently signed on for as a cosponsor.

  • Recognize, Assist, Include, Support, and Engage Family Caregivers Act of 2015 or the RAISE Family Caregivers Act – H.R. 3099
    This bill directs the Department of Health and Human Services (HHS) to develop, maintain, and periodically update a National Family Caregiving Strategy. HHS shall convene a Family Caregiving Advisory Council to advise it on recognizing and supporting family caregivers. Read more.
  • PCHETA: Palliative Care and Hospice Training Act – H.R. 3119
    This bill amends the Public Health Service Act to require the Department of Health and Human Services (HHS) to award grants or contracts for Palliative Care and Hospice Education Centers. These Centers must improve the training of health professionals in palliative care and establish traineeships for individuals preparing for advanced education nursing degrees, social work degrees, or advanced degrees in physician assistant studies in palliative care. Read more.

We should all take the opportunity to speak to our representatives when they hold their town hall, community meetings, write to them, and make sure that caregiving is a topic that they hear about and understand.

 

Emergency Planning for FTD Caregivers

Along with the day-to-day caring responsibilities. finding the time to plan and be prepared to deal with a severe snow or ice storm, hurricane, tornado, flooding, power outage, fire, etc. is important.

This came to mind as I’m watching the weather report about us getting hit with a Nor-easter this evening.

I also think about it because I’m a member of Westport’s Community Emergency Response Team, community volunteers supporting emergency services, and in the past we have helped run shelters for residents who had to leave their homes.

r-uHere is a link to Are You Ready, prepared by the Westport Weston Health District. While some of it is specific to those towns, contact numbers for example, most is general preparedness information pertinent to anyone and it is nicely laid out and easily readable.

Another place for info is this link to an article on the National Caregivers Library site about things to consider.

Also a link to www.ready.gov, a Homeland Security web site.

 

AFTD – Informal FTD Caregiver Connections

Would you like to connect with another FTD caregiver? No support group in your area?

The AFTD has a program where they can match FTD caregivers who are in a similar situation.

After agreement by both parties, they share a name and a contact number or email, but no other personal information.  You take it from there.

To request a match or to register, contact the AFTD at info@theaftd.org or toll-free 866-507-7222 for details.

Our Three Year Anniversary – FTDSupportCT.org

It was our three year anniversary on September 28, our first post was in 2013. Hard to believe.

Our viewership has increased significantly. We have already exceeded the number of visitors this year by almost 170 and page views by over 500 compared to 2015, with 2 1/2 months to go.

I feel good that we are here for people in need, but wish we didn’t have to be. It would be nice someday to do a final post because we aren’t needed any longer.

stats-10-2016

Fearless Caregiver Conference 2016 takes place in Wallingford at the Oakdale Theater on Nov. 3.

flyer I’ve been to it 3 times over the years and have found it very worthwhile.

There are vendors from home health care agencies, assisted living, the Alzheimer’s Assoc, CT state agency on aging, etc. you have the opportunity to ask questions, get info.

The speakers have been good and informative. They run it in an interactive way, bringing the mic into the audience and encourage questions and discussion.

The brothers who run it, Gary and Steven Barg, who started Caregiver Magazine, are passionate about what they do. It tends to feel like a big support group.

Here is a link to the agenda. It ends at 2:30 but if you had to leave early you would still get value from attending. Caregivers go for free, professionals pay.

Here is a  link to the main page where you can register.

Click here for the flyer.