I will be one of the exhibitors at the Fair, demonstrating the approach I developed for using the iPad to engage a person with dementia. www.TechForCaregiving.com
Here is an invitation from CaringKind if you are interested in attending.
“Recently there have been some exciting technological advances that may enhance the quality of life for people with dementia and their care partners. Please join us on Wednesday, April 26th as over a dozen exhibitors showcase their ideas and products at the opening night of CaringKind’s first annual Technology Fair. Space is limited.
To register, please click on the link below or copy and paste the following address into your browser:
April 26, 6pm-9pm https://www.surveymonkey.com/r/techfairday1
If you are unable to attend on the opening night, please consider visiting the Technology Fair on either Thursday, April 27 between 4pm and 7pm or Friday, April 28, between 1pm and 4pm. Please note that although you may arrive at any time during those hours, registration is required via the links below:
April 27, 4pm-7pm https://www.surveymonkey.com/r/techfairday2
April 28, 1pm-4pm https://www.surveymonkey.com/r/techfairday3
Thank you and we hope to see you at the Fair!”
For additional information or questions, contact firstname.lastname@example.org
Registration opens up in mid-February. Caregivers are welcome to attend. There is a fee. Last year it was $60. I’ve attended it more than once and have found it to be very informative.
Great speakers and a variety of vendors displaying their products and services. There has been a session on FTD the times I’ve attended.
For professionals who attend, they can get continuing education credits.
It is held at the Radisson Hotel in Cromwell. Sponsored by the Alzheimer’s Association, CT Chapter. More info.
Wouldn’t it be nice to have a place to go to get a brief description of terms like Aphasia, Acetylcholinesterase inhibitors, Dysphagia, Executive function, Lumbar puncture, Neuroleptic drugs, Tau, and many more terms we hear about.
Well there is.
FTDtalk, run by a group of scientists investigating FTD at the University College London Institute of Neurology in the UK, put together a glossary. Thank you scientists!
Go to www.ftdtalk.org/glossary/
The Alzheimer’s Association is a great resource for information and support. The local office of the CT chapter was extremely helpful to me and my wife.
They have a section on their web site that provides information by stages, early-stage caregiving, middle-stage caregiving, or late-stage caregiving, which is very helpful since each stage has its own unique aspects.
An online community: The ALZConnected® online community for everyone affected by dementia, Alzheimer’s or something else, like FTD.
An online tool, Alzheimer’s Navigator®: Designed to help guide you to answers by creating customized action plans and providing access to information, support and local resources.
Check it out at http://www.alz.org/care/overview.asp
AFTD’s 2017 Education Conference will be held on May 5th, 2017 at the Sheraton Inner Harbor Hotel in Baltimore, MD.
AFTD’s Education Conference provides opportunities for all members of the FTD community – researchers, medical professionals, caregivers and persons living with FTD – to meet in person, share resources and learn about the latest developments in FTD research.
Online registration will open in January.
There will be a screening of “His Neighbor Phil” at Christ and Holy Trinity Church in Westport this coming Sunday, July 10th, at 6pm.
If you aren’t familiar with the movie, it’s about a man whose wife has early-onset Alzheimer’s and how her diagnosis affects her family, the community and the caregivers.
I will be seeing it myself for the first time, I have had people recommend it.
Here is the plot summary from IMDB.
The movie is about 1 hour and 30 min, followed by a panel discussion. I’m on the panel, along with someone from the Alzheimer’s Assoc and from Synergy Home Care.
See this flyer for more details and how to RSVP.
You Are Not Alone
Overview of Frontotemporal Degeneration (FTD)
Learn About the Disease
Create Your Care Team
Legal and Financial Issues
Develop a Positive Daily Routine
Address Safety Issues
Gaining in Skills and Confidence
Research: The Key to Tomorrow
Download the PDF
2016 FTD Education Day: From Care to Cure at the Westin in Waltham
Friday, April 29, 2016
FTD Unit clinicians and staff will provide families, caregivers, patients and industry professionals a day of education, inspiration and connections for our FTD community.
Details at bit.ly/FTDCareToCure2016.
The Alzheimerʼs Association, Connecticut Chapter, is holding its 19th Annual Education Conference on April 7th in Cromwell, CT. Details.
There is a session on FTD. “This session will review the symptoms, diagnostic criteria and key points about providing clinical care for patients with behavioral variant frontotemporal dementia and primary progressive aphasia.” The presenter is Scott M. McGinnis, M.D., Massachusetts General Hospital Frontotemporal Disorders Unit.
I just found out about this today. It is open to the public.
Thursday, March 10, 2016 | 4:30pm – 6:30pm
Westport Center for Senior Activities
21 Imperial Avenue
Westport CT 06880
If you are not familiar with the movie ….
“Still Alice,” is a movie that gives us a rare window into the experience of living with Alzheimer’s disease—a glimpse of the inside looking out.
Dr. Alice Howland (Julianne Moore), a renowned linguistics professor, starts to forget words. When she receives a diagnosis of younger-onset Alzheimer’s disease, Alice and her family find their bonds thoroughly tested. Her struggle to stay connected to who she once was is frightening, heartbreaking and inspiring.
The screening is sponsored in part by the CT Chapter of the Alzheimer’s Association and representatives will be there for a discussion and to answer questions.