Time for a break

This will be my last post for awhile. The links along the right side bar of the page should still be helpful.

Hope to be back at some point in the future.



FTD Caregiver Support Group Meeting, July 17th

Date: Sunday, July 17th, 1:00-2:30pm 

Location: Arden Courts Memory Care, 45 South Rd, Farmington, CT.

The CT FTD Foundation has a support group meeting for all caregiver’s and families/friends who have a loved one diagnosed with Frontotemporal Degeneration (FTD).

Courtyard-003The support group meetings are a chance for everyone to share their experiences and express concerns. It also gives a chance to share ideas that have worked for other caregivers going through the same experience. Meetings are informal.

You are welcome to bring your loved one with FTD, Arden Courts will provide respite care in a separate room. Please just let us know in advance if your loved one will attend.

Meetings are the third Sunday of every month at Arden Courts Memory Care, 45 South Rd, Farmington, CT. Time: 1:00pm – 2:30pm. Hosted by the CT FTD Foundation, meetings are free. For more information contact info@ctftdfoundation.org.

“His Neighbor Phil”, a film about caregiving and early onset dementia, screening in Westport

There will be a screening of “His Neighbor Phil” at Christ and Holy Trinity Church in Westport this coming Sunday, July 10th, at 6pm.

F;yerIf you aren’t familiar with the movie, it’s about a man whose wife has early-onset Alzheimer’s and how her diagnosis affects her family, the community and the caregivers.

I will be seeing it myself for the first time, I have had people recommend it.

Here is the plot summary from IMDB.

The movie is about 1 hour and 30 min, followed by a panel discussion. I’m on the panel, along with someone from the Alzheimer’s  Assoc and from Synergy Home Care.

See this flyer for more details and how to RSVP.


Held every two years, the International Conference on Frontotemporal Dementias (ICFTD) provides the primary venue for the international synthesis, exchange and dissemination of research evidence related to FTD. Experts from diverse backgrounds share recent discoveries, insights and opinions.

August 31-September 2, 2016 in Munich, Germany.

The International FTD Caregiver Conference 2016 (held on September 1st), offered in conjunction with the ICFTD, provides a forum for discussion and an opportunity to promote International awareness for FTD. The Conference will highlight the urgent need for patient-oriented research and the development of patient care and support strategies.

For more information go to the conference website: www.icftd2016.de

The AFTD is a Platinum Sponsor of the 10th ICFTD

FTD – When There Are Kids in the Home: Creating a Village of Support

The Partners in FTD Care Newsletter: A Care Scenario

FTD NEWSLThe stress put on families when a parent is diagnosed with FTD and have children at home is significant.

Residential and facility care staff have an opportunity to help the entire family cope by supporting the primary caregiver.

Providing information and resources for education, while offering comfort throughout all phases, is essential to ensure the health of the family and to the adjustment and well-being of individual members.

June is Brain Awareness Month!


Worldwide, 47 million people are living with Alzheimer’s
and other dementias.

Join the Alzheimer’s Association in going purple and
raising awareness this June.

The more people know about Alzheimer’s, the more action we inspire.

The Treat FTD Fund

The Treat FTD Fund is a joint program of AFTD and the ADDF, will accelerate clinical trials for FTD over the next decade. And it has the potential to advance treatments for other neurodegenerative diseases, such as Alzheimer’s, ALS and Parkinson’s.

The Lauder Foundation, Leonard A. Lauder, President, and Ronald S. Lauder have jointly committed $5 million, which will be combined with $5 million from the Samuel I. Newhouse Foundation.

The Treat FTD Fund will build on recent successes of both foundations in early-stage drug discovery and biomarker development that make clinical trials possible and increase their odds of success. A “Request for Proposals,” expected to be announced this summer, will be available at www.alzdiscovery.org and www.theaftd.org.