AFTD – Informal FTD Caregiver Connections

Would you like to connect with another FTD caregiver? No support group in your area?

The AFTD has a program where they can match FTD caregivers who are in a similar situation.

After agreement by both parties, they share a name and a contact number or email, but no other personal information.  You take it from there.

To request a match or to register, contact the AFTD at or toll-free 866-507-7222 for details.

Year End 2016 FTD Blog Statistics

We ended the year with a 66% increase in the number of views and a 34% increase in the number of visitors compared to 2015.

Since the beginning, there have been 3,341 visitors and 4,828 views.

As I said the last time I posted the stats, I feel good that we are here for people in need, but wish we didn’t have to be. It would be nice someday to do a final post because we aren’t needed any longer.


FTD Telephone support group for parents

The AFTD sponsors a telephone support group for parents who manage care for a spouse with FTD and have school age children at home.  To learn more about the group, contact or 866-507-7221.

I’ve heard good things about this telephone group. It was highly recommended by a parent who is also a member of another group I attend.

AFTD Kids and Teens Web Site

Hearing two people in the NYC support group I go to, mothers who have young children and are struggling with what to tell  them, got me to post again this info re the AFTD web site developed for kids and teens. Teens web

“It is designed to be a nurturing, understanding and safe environment for your kids to visit to read about FTD, find coping strategies, engage around positive activities and hear from other kids who know FTD firsthand. We hope that they will feel less isolated and more empowered by visiting the site and finding they are not alone in their experiences with FTD.”

Caregiver Support Group at the Norwalk Senior Center

Date: April 9th, 10:30 to 11:30am

Location: Norwalk Senior Center, 11 Allen Road, Norwalk

The Caregiver Support Group at the Norwalk Senior Center is for caregivers of family members or friends diagnosed with Alzheimer’s, Parkinson’s or Dementia.

The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information that NSC Photomight be helpful. Meetings are friendly and informal. Occasionally there are themes and guest speakers.

Meetings are on the second and fourth Thursdays of the month. At the first meeting of the month, there are usually Dementia Care Specialists from Wilton Meadows who provide activities for loved ones while caregivers meet. Please call to confirm before bringing your loved one.

Hosted by Lynn Westfield, the group is free and open to all. Membership in the Senior Center is not required.

For more information or if you are interested in participating, please call Lynn at (203) 847-3115 ext.108 or send an email to her at

FTD Event in Fairfield, Oct. 9

Just found out about this – from the AFTD web site –

Food for Thought in CT– Brian Kelahan will host “To Whom I May Concern”, patients and caregivers read their personal stories of coping with FTD, at the Fairfield Senior Center, 100 Mona Terrace, Fairfield, CT, on October 9th at 6pm.

There was no contact info, the senior center number is 203.256.3166.

I’ll be attending the CT FTD Foundation event in Plantsville that evening so won’t be able to make this one.

AFTD’s 2014 Education Conference and Annual Meeting

The AFTD will host its education conference and annual meeting in White Plains, NY.  on Friday, March 14, 2014,  10 a.m. – 6 p.m. The keynote speaker will be former NBC Chief Health and Science Correspondent Robert Bazell.

For complete conference details, online registration link and travel grant information, visit AFTD’s conference page.

Note that while there is a $50 registration fee for healthcare professionals, caregivers may attend at no charge.

Respite Care Available in Connecticut

What is The Connecticut Statewide Respite Care Program?

Eligible families may apply for daytime or overnight respite care services including but not limited to: Adult day care, home health aide, homemaker/companion, skilled nursing care, self-directed care, Cognitive Training, or short term nursing home placement.

For more information and to enroll, go to the CT Chapter of the Alzheimer’s Association at

CT Respite ALZ Logo