FTD Medical Resources

New York City

Columbia University Medical Center – Taub Institute

“Our center includes a team of neurologists, neuropsychologists, psychiatrists and other health-care professionals (nurse, social worker, genetic counselors) specially trained in diagnosing and treating memory disorders will perform your evaluation. After the evaluation, the neurologist will discuss with you the results of your evaluation and formulate a treatment and management plan.”

Personal note: Dr. Huey specializes in FTD and comes highly recommended by the leader of the FTD support group that I go to in NYC, and others in the group who have gone to him. Everything went smoothly, his staff was great, he is wonderful. I had met him a couple of months ago at a presentation he made to the CT FTD Foundation and had a chance to talk to him and ask questions then. I was very impressed. Would highly recommend him.

Boston

Massachusetts General Hospital Frontotemporal Disorders Unit

“This Unit provides diagnosis and treatment for Frontotemporal Dementia and related disorders including Primary Progressive Aphasia, Semantic Dementia, Corticobasal Degeneration Syndrome, and Progressive Supranuclear Palsy.”

Personal note: I met the lead MD at a meeting, spoke to him and was impressed. Tried to set up an appointment for him to review my wife’s situation, and despite doing the things his staff asked to do (send records, register at MGH), was never able to get the appt set up. Phone calls were not returned, emails not responded to, when someone answered the phone there, it was always someone else that I needed to talk to, was put into voicemail, never heard back. Someone in one of the support groups had the same “non responsive” experience after the first visit. That was in 2013, maybe things have changed there.

Philadelphia

The Penn Frontotemporal Degeneration Center

“The Penn Frontotemporal Degeneration Center brings together an energetic team of creative clinicians and researchers dedicated to the investigation and treatment of early onset neurodegenerative conditions.   Our Center members include neurologists, neuropathologists, neuroscientists, geneticists, genetic counselors, neuropsychologists, nurses, social workers, and clinical research coordinators, all targeting a cure for Frontotemporal degeneration.”

Connecticut

Bridgeport Hospital Center for Geriatrics

“Geriatrics is medical care dedicated to treating older adults. A geriatrician—a physician specializing in the medical care of the elderly—has a full understanding of the wide range of physical, mental, medical, social and spiritual issues that older adults can have.”

Personal note: This is where my wife was initially diagnosed and treated. The MD who was highly recommended and treated my wife has left the practice, so I have no recent experience as of 2015.