Date: Sunday, November 20th, 1:00-2:30pm
Location: Arden Courts Memory Care, 45 South Rd, Farmington, CT., a little over an hour from the Norwalk area.
RSVP: email@example.com to confirm. Sponsored by the CT FTD Foundation.
Arden Courts will provide respite care in a separate room if you bring the person with FTD with you. Just let them know in advance in the RSVP email.
Meetings are the third Sunday of every month at Arden Courts Memory Care, 45 South Rd, Farmington, CT. Time: 1:00pm – 2:30pm. Hosted by the CT FTD Foundation, meetings are free. For more information contact firstname.lastname@example.org.
If you haven’t seen it, here is it. The first publicly aired PSA about FTD has reached more than 12 million viewers since August 2016.
The Hope Rising benefit honored David Zaslav, President and CEO of Discovery Communications, whose generosity made it possible.
There is still time to get involved and donate!
Food for Thought (FFT), the grassroots campaign created to educate people about FTD, while raising money to help fight this disease, started on September 25 and ends on October 9, 2016.
Here is a link to events accepting online donations.
On September 29, the AFTD held its inaugural benefit, Hope Rising, in New York City at the Pierre Hotel.
More than 400 people attended. Paula Zahn emceed and Tony-Award winning performer Kelli O’Hara sang for the evening’s guests.
Olivia Goldring and Susan Suchan, who has been diagnosed with FTD/PPA, shared their personal perspectives on how FTD impacts individuals and families, and their hopes for the future.
A 2nd new FTD full-page awareness ad appeared today, 10/2/2016, in the main section of the Sunday New York Times, thanks to support from a generous donor.
The first one appeared last Sunday, 9/25/2016. View.
“Living with FTD is Hard. Living Without Help is Harder.”
Download and view or print the PDF from the AFTD web site
Would you like to know about some of the Food for Thought events? Read the stories, help them achieve their goals. Click here to see them.
Food for Thought is a grassroots campaign created to educate people about FTD, while raising money to help fight this disease. This year it is timed to run during World FTD Awareness Week, and one week beyond, from September 25 through October 9, 2016.
One event has already raised over $38,000, the Third Annual Colonial Electric Food for Thought Charity Event, Steve Bellwoar, King of Prussia, PA. Nice going!!!
Curious about organizations in other countries, here is a list of some associations in other countries.
Note: To translate the site to English if necessary, using the Chrome browser, right click on the home page and choose translate. I tried with Internet Explorer but it didn’t offer the translate option in all cases.
Australia – The Australian Fronto-Temporal Dementia Association (AFTDA)
Twitter : @theAFTDA
France – Association France-DFT pour les Dégénérescences Fronto-Temporales
FB | Twitter | Instagram | Youtube : @FranceDFT
Germany – Deutsche Alzheimer Gesellschaft e. V. Selbsthilfe Demenz
FB : @DeutscheAlzheimerGesellschaft
Italy – Associazione Italiana Malattia Fronto Temporale (AIMFT)
FB : Aimft – Associazione Italiana Malattia Fronto Temporale
Netherlands – FTD Lotgenoten
FB | Twitter | Youtube : @FTDlotgenoten
Spain – Asociación de Demencia Frontotemporal (ADEF)
FB : @asociacion.adef
United States – The Association for Frontotemporal Degeneration (AFTD)
FB : @TheAFTD | Twitter : @AFTDcure | Youtube : @TheAFTDorg
UK – Frontotemporal Dementia Support Group (FTDSG)
Twitter : @RareDementia
Source: World FTD United Facebook page – www.facebook.com/worldFTDunited.
The inaugural Hope Rising Benefit is the largest event of its kind ever hosted by AFTD, targeting increased awareness of FTD and support needed to accelerate AFTD’s mission.
Those gathered on 9/29 will play a vital role in advancing: collaborative research; increased awareness; vital support for those directly impacted; education for healthcare professionals; and advocacy for appropriate, affordable services.
Three members of the AFTD community, Donald Newhouse, AFTD Board member Kathy Newhouse Mele, and Daniel Hedaya, will host the event.
The evening will celebrate one of AFTD’s most generous supporters, David Zaslav, President and CEO of Discovery Communications, who will be honored with the Susan Newhouse & Si Newhouse Award of Hope.
The event takes place at The Pierre Hotel in New York City on Thursday, September 29, 2016. Details.
Following up on my post yesterday about the Today Show interview this morning with AFTD volunteer and donor Donald Newhouse and AFTD Medical Advisory Council member Dr. Ted Huey, click here to watch the video.
From the NBC Today Show web site – “It’s World FTD Awareness Week, spotlighting frontotemporal dementia, a serious ailment affecting the middle-aged. Don Newhouse, president of Advanced Publications, lost his wife, Suzi, to the disease, and his brother, Si, was recently diagnosed as well. Newhouse shares his story with TODAY’s Matt Lauer, and psychiatrist and neurologist Dr. Ted Huey explains that while Alzheimer’s disease affects the elderly, FTD typically manifests between ages 55 and 65. Learn the four main symptoms you should look out for.”
World FTD Awareness Week is September 25 – October 2. Global collaboration is the best way to improve quality of life for people facing FTD — and to drive treatment toward a cure. Together, we can bring hope for a future in which FTD is effectively diagnosed, treated, cured, and even prevented.
For the second year, we are joining together to mark a common week for advocacy to raise awareness of FTD, and the need for a comprehensive, collaborative response. For all those whose lives have been touched by FTD, that response cannot come soon enough.
Wherever they live, families deserve hope for a future in which FTD in effectively diagnosed, treated, cured, and ultimately, prevented.
Go to the AFTD site for more information about events and what you can do to participate.