I will be one of the exhibitors at the Fair, demonstrating the approach I developed for using the iPad to engage a person with dementia. www.TechForCaregiving.com
Here is an invitation from CaringKind if you are interested in attending.
“Recently there have been some exciting technological advances that may enhance the quality of life for people with dementia and their care partners. Please join us on Wednesday, April 26th as over a dozen exhibitors showcase their ideas and products at the opening night of CaringKind’s first annual Technology Fair. Space is limited.
To register, please click on the link below or copy and paste the following address into your browser:
April 26, 6pm-9pm https://www.surveymonkey.com/r/techfairday1
If you are unable to attend on the opening night, please consider visiting the Technology Fair on either Thursday, April 27 between 4pm and 7pm or Friday, April 28, between 1pm and 4pm. Please note that although you may arrive at any time during those hours, registration is required via the links below:
April 27, 4pm-7pm https://www.surveymonkey.com/r/techfairday2
April 28, 1pm-4pm https://www.surveymonkey.com/r/techfairday3
Thank you and we hope to see you at the Fair!”
For additional information or questions, contact firstname.lastname@example.org
The Effective Communications Strategies program explores how communication takes place when someone has Alzheimer’s disease: learn to decode verbal and behavioral messages and identify strategies to help connect and communicate at each stage of disease. Join Shanon Jordan, South Western Regional Director of the CT Alzheimer’s Association, on March 29, 2017 from 12:00-1:00 pm at Brookdale Wilton, 96 Danbury Road, Wilton. Contact Christy Perone, 203.761.8999 to register.
I was invited by the CT Chapter of the Alzheimer’s Association to meet with Rep. Jim Himes along with three other caregivers. The objective of the meeting was to help him understand the challenges of being a caregiver and raise his awareness and get his support for two pending pieces of legislation.
We all had some powerful stories to tell and I think we had some impact on him. He listened patiently and asked some good questions. After breaking, he continued to talk one on one with a couple of us. Two of us were FTD caregivers.
There are two bills in Congress that address the needs of caregivers that he recently signed on for as a cosponsor.
- Recognize, Assist, Include, Support, and Engage Family Caregivers Act of 2015 or the RAISE Family Caregivers Act – H.R. 3099
This bill directs the Department of Health and Human Services (HHS) to develop, maintain, and periodically update a National Family Caregiving Strategy. HHS shall convene a Family Caregiving Advisory Council to advise it on recognizing and supporting family caregivers. Read more.
- PCHETA: Palliative Care and Hospice Training Act – H.R. 3119
This bill amends the Public Health Service Act to require the Department of Health and Human Services (HHS) to award grants or contracts for Palliative Care and Hospice Education Centers. These Centers must improve the training of health professionals in palliative care and establish traineeships for individuals preparing for advanced education nursing degrees, social work degrees, or advanced degrees in physician assistant studies in palliative care. Read more.
We should all take the opportunity to speak to our representatives when they hold their town hall, community meetings, write to them, and make sure that caregiving is a topic that they hear about and understand.
Registration opens up in mid-February. Caregivers are welcome to attend. There is a fee. Last year it was $60. I’ve attended it more than once and have found it to be very informative.
Great speakers and a variety of vendors displaying their products and services. There has been a session on FTD the times I’ve attended.
For professionals who attend, they can get continuing education credits.
It is held at the Radisson Hotel in Cromwell. Sponsored by the Alzheimer’s Association, CT Chapter. More info.
Wouldn’t it be nice to have a place to go to get a brief description of terms like Aphasia, Acetylcholinesterase inhibitors, Dysphagia, Executive function, Lumbar puncture, Neuroleptic drugs, Tau, and many more terms we hear about.
Well there is.
FTDtalk, run by a group of scientists investigating FTD at the University College London Institute of Neurology in the UK, put together a glossary. Thank you scientists!
Go to www.ftdtalk.org/glossary/
The Alzheimer’s Association is a great resource for information and support. The local office of the CT chapter was extremely helpful to me and my wife.
They have a section on their web site that provides information by stages, early-stage caregiving, middle-stage caregiving, or late-stage caregiving, which is very helpful since each stage has its own unique aspects.
An online community: The ALZConnected® online community for everyone affected by dementia, Alzheimer’s or something else, like FTD.
An online tool, Alzheimer’s Navigator®: Designed to help guide you to answers by creating customized action plans and providing access to information, support and local resources.
Check it out at http://www.alz.org/care/overview.asp
I realize it is short notice, but I just became aware of this on the Daily Voice web site.
“The Alzheimer’s Association is sponsoring The Holidays and Dementia talk at Bigelow Center for Senior Activities on Wednesday, Dec 14th at 10:30 a.m.
The focus will be on helping caregivers feel less anxious, frustrated and stressed. With some planning and adjusted expectations, celebrations can be happy, memorable occasions.
The Center is located at 100 Mona Terrace, Fairfield. Any CT resident over 55 is welcome to attend. The program is free of charge. Pre-registration is required by calling 203-256-3166.”
This can be an especially tough time of the year when caring for someone with dementia.
Thinking ahead and reading through the tips below may help.
So much depends on the stage of the disease and how the family, friends are reacting to it.
Now that my wife is in the advanced stage and having been through a few holiday seasons, it’s become somewhat easier to plan, but each year is different as the disease and other circumstances evolve.
For Thanksgiving, I’ll celebrate with her at the assisted living facility. They have a special luncheon that day. Then possibly take her to a family celebration, but I’m thinking about the chaos, the kids running around, the activity and how she will react to it. Fortunately, my oldest son has a spacious house, there are places to go to get some quiet time if needed. Plus he is only a 45 min drive from the assisted living facility.
Here are some tips from the Alzheimer’s Association – Holidays and Alzheimer’s Families
To quote from the Alzheimer’s article, “Take a deep breath. With some planning and adjusted expectations, your celebrations can still be happy, memorable occasions.” I wish that for you.
On Sunday, October 16, 2016, Esther and Keith Harvey from The Connecticut Frontotemporal Dementia Foundation, Inc. educated people about FTD during the “Walk to End Alzheimer’s” in the Greater Hartford, CT area. An awareness table was offered with information on FTD, AFTD and The Connecticut Frontotemporal Dementia Foundation, Inc. Thank you, Esther and Keith, for spreading much needed FTD awareness!