I just heard about this group. It’s great to see young people getting involved!
The Alzheimer’s Youth Alliance (AYA), a group of about 20 high school students from across Fairfield County, raises awareness and funds for the Alzheimer’s Association.
Founded by Ava Vanech, a freshman at Sacred Heart University, to honor her grandfather who had Alzheimer’s disease. Although she never got to meet him, she sees the impact this disease has on her family.
This inspired her to spearhead the founding of the group. In 2015 the group organized a walk team to raise over $16,000!
They will be at the Alzheimer’s Walk on September 18th at Calf Pasture Beach in Norwalk.
Go to the Team page of ALZHEIMER’S YOUTH ALLIANCE to support them.
Held annually in more than 600 communities nationwide, the Alzheimer’s Association Walk to End Alzheimer’s® is the world’s largest event to raise awareness and funds for Alzheimer’s care, support and research. This inspiring event calls on participants of all ages and abilities to reclaim the future for millions!
The local walk is at Calf Pasture Beach in Norwalk on Sunday, September 18, 2016. Click here for details.
I’m walking with TEAM MCKEE, click here to sign up.
An article written by Sharon Hall, who is the caretaker of her husband, who has been diagnosed with Frontotemporal Degeneration, and her elderly mother. She calls them ‘The Twins.’
“The world stopped. The breath seemed to leave my body. My husband had not changed intentionally, his brain was degenerating in the very places that make him, him. Deep inside me I knew. I knew this was what happened. I had spent the last year and a half struggling through the worst part of my life. Thinking that the man who was so tender and loving had turned into a beast, and maybe it had something to do with me.”
Read the article
While developed for Alzheimer’s caregivers, it applies to FTD as well.
Alzheimer’s Navigator helps guide Caregivers to answers by creating a personalized action plan and linking you to information, support and local resources.
You can set up an account or do it as a guest.
There will be a screening of “His Neighbor Phil” at Christ and Holy Trinity Church in Westport this coming Sunday, July 10th, at 6pm.
If you aren’t familiar with the movie, it’s about a man whose wife has early-onset Alzheimer’s and how her diagnosis affects her family, the community and the caregivers.
I will be seeing it myself for the first time, I have had people recommend it.
Here is the plot summary from IMDB.
The movie is about 1 hour and 30 min, followed by a panel discussion. I’m on the panel, along with someone from the Alzheimer’s Assoc and from Synergy Home Care.
See this flyer for more details and how to RSVP.
From the Alzheimer’s CT Chapter:
“The Longest Day is a team event to raise funds and awareness for the Alzheimer’s Association®. Held annually on the summer solstice, the duration of this sunrise-to-sunset event symbolizes the challenging journey of those living with the disease and their caregivers. Teams are encouraged to create their own experience as they fundraise and participate in an activity they love to honor someone facing the disease.”
For more information go to http://act.alz.org/site/TR?fr_id=8480&pg=informational&sid=22697
I just found out about this today. It is open to the public.
Thursday, March 10, 2016 | 4:30pm – 6:30pm
Westport Center for Senior Activities
21 Imperial Avenue
Westport CT 06880
If you are not familiar with the movie ….
“Still Alice,” is a movie that gives us a rare window into the experience of living with Alzheimer’s disease—a glimpse of the inside looking out.
Dr. Alice Howland (Julianne Moore), a renowned linguistics professor, starts to forget words. When she receives a diagnosis of younger-onset Alzheimer’s disease, Alice and her family find their bonds thoroughly tested. Her struggle to stay connected to who she once was is frightening, heartbreaking and inspiring.
The screening is sponsored in part by the CT Chapter of the Alzheimer’s Association and representatives will be there for a discussion and to answer questions.
The Alzheimerʼs Association, Connecticut Chapter, is holding its 19th Annual Education Conference on April 7th in Cromwell, CT. Details.
According to their web site, “This full-day conference is designed for both professionals and family caregivers. Our aim is to share best practices and creative interventions for the care, treatment and preservation of the quality of life of persons with Alzheimerʼs and related dementias.”
I’ve been to the conference three times and have to found it to be very helpful. Would highly recommend it for caregivers.
There is a session on FTD. “This session will review the symptoms, diagnostic criteria and key points about providing clinical care for patients with behavioral variant frontotemporal dementia and primary progressive aphasia.” The presenter is Scott M. McGinnis, M.D., Massachusetts General Hospital Frontotemporal Disorders Unit.
The Alzheimer’s Association Connecticut Chapter 19th Annual Statewide Dementia Education Conference will be held on April 7, 2016 at the Crowne Plaza Hotel in Cromwell, CT.
Mark your calendar. Details to follow. I’ve attended and found it to be very worthwhile. There was an FTD seminar at a previous conference, will have to wait and see if there is this year when the agenda is published.
I thought this was a very creative idea, saw it on a news broadcast.
Home Instead Senior Care approached McKinnon’s Supermarket in Portsmouth to train their employees to recognize customers with Alzheimer’s or dementia, and help them shop.
They trained the manager and workers free of charge. McKinnon’s is the first certified Alzheimer’s friendly business in New Hampshire.
More at WMUR 9 Portsmouth.