The Holidays and Dementia talk in Fairfield – Dec 14th

I realize it is short notice, but I just became aware of this on the Daily Voice web site. big

“The Alzheimer’s Association is sponsoring The Holidays and Dementia talk at Bigelow Center for Senior Activities on Wednesday, Dec 14th at 10:30 a.m.

The focus will be on helping caregivers feel less anxious, frustrated and stressed. With some planning and adjusted expectations, celebrations can be happy, memorable occasions.

The Center is located at 100 Mona Terrace, Fairfield. Any CT resident over 55 is welcome to attend. The program is free of charge. Pre-registration is required by calling 203-256-3166.”

Preparing for the holiday season – Plan ahead

This can be an especially tough time of the year when caring for someone with dementia.

Thinking ahead and reading through the tips below may help.

So much depends on the stage of the disease and how the family, friends are reacting to it.

Now that my wife is in the advanced stage and having been through a few holiday seasons, it’s become somewhat easier to plan, but each year is different as the disease and other circumstances evolve.

For Thanksgiving, I’ll celebrate with her at the assisted living facility. They have a special luncheon that day. Then possibly take her to a family celebration, but I’m thinking about the chaos, the kids running around, the activity and how she will react to it. Fortunately, my oldest son has a spacious house, there are places to go to get some quiet time if needed. Plus he is only a 45 min drive from the assisted living facility.

turkHere are some tips from the Alzheimer’s Association –  Holidays and Alzheimer’s Families

To quote from the Alzheimer’s article, “Take a deep breath. With some planning and adjusted expectations, your celebrations can still be happy, memorable occasions.” I wish that for you.



FTD at the “Walk to End Alzheimer’s” in Hartford

On Sunday, October 16, 2016, Esther and Keith Harvey from The Connecticut Frontotemporal Dementia Foundation, Inc. educated people about FTD during the “Walk to End Alzheimer’s” in the Greater Hartford, CT area. An awareness table was offered with information on FTD, AFTD and The Connecticut Frontotemporal Dementia Foundation, Inc. Thank you, Esther and Keith, for spreading much needed FTD awareness!


Alzheimer’s Youth Alliance (AYA) from Fairfield County

I just heard about this group. It’s great to see young people getting involved!

The Alzheimer’s Youth Alliance (AYA), a group of about 20 high school students from across Fairfield County, raises awareness and funds for the Alzheimer’s Association.

FouAYA.JPGnded by Ava Vanech, a freshman at Sacred Heart University, to honor her grandfather who had Alzheimer’s disease. Although she never got to meet him, she sees the impact this disease has on her family.

This inspired her to spearhead the founding of the group. In 2015 the group organized a walk team to raise over $16,000! 

They will be at the Alzheimer’s Walk on September 18th at Calf Pasture Beach in Norwalk.

Go to the Team page of ALZHEIMER’S YOUTH ALLIANCE to support them.


2016 Walk to End Alzheimer’s – Fairfield County, CT

hdr.JPGHeld annually in more than 600 communities nationwide, the Alzheimer’s Association Walk to End Alzheimer’s® is the world’s largest event to raise awareness and funds for Alzheimer’s care, support and research. This inspiring event calls on participants of all ages and abilities to reclaim the future for millions!

The local walk is at Calf Pasture Beach in Norwalk on Sunday, September 18, 2016. Click here for details.

I’m walking with TEAM MCKEE, click here to sign up.

When Dementia Isn’t Alzheimer’s — FTD Awareness

An article written by Sharon Hall, who is the caretaker of her husband, who has been diagnosed with Frontotemporal Degeneration, and her elderly mother. She calls them ‘The Twins.’ 

huff“The world stopped. The breath seemed to leave my body. My husband had not changed intentionally, his brain was degenerating in the very places that make him, him. Deep inside me I knew. I knew this was what happened. I had spent the last year and a half struggling through the worst part of my life. Thinking that the man who was so tender and loving had turned into a beast, and maybe it had something to do with me.”

Read the article