I will be one of the exhibitors at the Fair, demonstrating the approach I developed for using the iPad to engage a person with dementia. www.TechForCaregiving.com
Here is an invitation from CaringKind if you are interested in attending.
“Recently there have been some exciting technological advances that may enhance the quality of life for people with dementia and their care partners. Please join us on Wednesday, April 26th as over a dozen exhibitors showcase their ideas and products at the opening night of CaringKind’s first annual Technology Fair. Space is limited.
To register, please click on the link below or copy and paste the following address into your browser:
April 26, 6pm-9pm https://www.surveymonkey.com/r/techfairday1
If you are unable to attend on the opening night, please consider visiting the Technology Fair on either Thursday, April 27 between 4pm and 7pm or Friday, April 28, between 1pm and 4pm. Please note that although you may arrive at any time during those hours, registration is required via the links below:
April 27, 4pm-7pm https://www.surveymonkey.com/r/techfairday2
April 28, 1pm-4pm https://www.surveymonkey.com/r/techfairday3
Thank you and we hope to see you at the Fair!”
For additional information or questions, contact firstname.lastname@example.org
AFTD’s Partners in FTD Care is an on-going initiative to educate professionals about FTD and develop best practices in community care. Partners in FTD Care materials are developed by a committee of clinical nurse educators, social workers, and family and professional caregivers with contributions from specialists in speech-language pathology, occupational therapy, hospice. Partners in FTD Care has two elements:
- Introductory Educational Materials
- Quarterly e-newsletters featuring case studies in FTD
This is information that you can share with an MD as you are going through the diagnostic process if there is uncertainly on the part of the MD.
For more information go to http://www.theaftd.org/understandingftd/healthcare-professionals
The Effective Communications Strategies program explores how communication takes place when someone has Alzheimer’s disease: learn to decode verbal and behavioral messages and identify strategies to help connect and communicate at each stage of disease. Join Shanon Jordan, South Western Regional Director of the CT Alzheimer’s Association, on March 29, 2017 from 12:00-1:00 pm at Brookdale Wilton, 96 Danbury Road, Wilton. Contact Christy Perone, 203.761.8999 to register.
I was invited by the CT Chapter of the Alzheimer’s Association to meet with Rep. Jim Himes along with three other caregivers. The objective of the meeting was to help him understand the challenges of being a caregiver and raise his awareness and get his support for two pending pieces of legislation.
We all had some powerful stories to tell and I think we had some impact on him. He listened patiently and asked some good questions. After breaking, he continued to talk one on one with a couple of us. Two of us were FTD caregivers.
There are two bills in Congress that address the needs of caregivers that he recently signed on for as a cosponsor.
- Recognize, Assist, Include, Support, and Engage Family Caregivers Act of 2015 or the RAISE Family Caregivers Act – H.R. 3099
This bill directs the Department of Health and Human Services (HHS) to develop, maintain, and periodically update a National Family Caregiving Strategy. HHS shall convene a Family Caregiving Advisory Council to advise it on recognizing and supporting family caregivers. Read more.
- PCHETA: Palliative Care and Hospice Training Act – H.R. 3119
This bill amends the Public Health Service Act to require the Department of Health and Human Services (HHS) to award grants or contracts for Palliative Care and Hospice Education Centers. These Centers must improve the training of health professionals in palliative care and establish traineeships for individuals preparing for advanced education nursing degrees, social work degrees, or advanced degrees in physician assistant studies in palliative care. Read more.
We should all take the opportunity to speak to our representatives when they hold their town hall, community meetings, write to them, and make sure that caregiving is a topic that they hear about and understand.
Maplewood at Stony Hill in Bethel is hosting an educational seminar for both professionals and personal caregivers about FTD.
During this educational session you will learn about the differences between Frontotemporal Dementia (FTD) and other forms of dementia, the subtypes of FTD, common behavioral expressions and strategies for managing behaviors.
DATE: Tuesday, March 14TH, 4:30 PM – 7:00 PM
LOCATION: Maplewood at Stony Hill, 46 Stony Hill Road, Bethel, Connecticut
For more information or to RSVP, contact Eileen Duggan at 914-534-1126 or at email@example.com.
On that channel is the second installment of the AFTD’s Educational Webinar Series which brings in experts to address issues important to all whose lives are impacted by FTD.
AFTD Education Webinar, January 12, 2017: A Care Paradigm for Persons with FTD
Presented by Dr. Alvin Holm, this AFTD educational webinar explores how FTD treatment benefits from an integrated and comprehensive approach. Learn how symptom-specific therapies, wellness management and environmental support can help caregivers manage FTD care more effectively.
Alvin Holm, M.D., FACP, is Founder and Director of the Cognitive and Behavioral Disorders Program at Bethesda Hospital in St. Paul, Minnesota. He has more than 25 years of experience in adult medicine and neuropsychiatry.
There are about 25 other videos on that channel as well, events, personal messages, a PSA and more. AFTD YouTube Channel.
Registration opens up in mid-February. Caregivers are welcome to attend. There is a fee. Last year it was $60. I’ve attended it more than once and have found it to be very informative.
Great speakers and a variety of vendors displaying their products and services. There has been a session on FTD the times I’ve attended.
For professionals who attend, they can get continuing education credits.
It is held at the Radisson Hotel in Cromwell. Sponsored by the Alzheimer’s Association, CT Chapter. More info.
Along with the day-to-day caring responsibilities. finding the time to plan and be prepared to deal with a severe snow or ice storm, hurricane, tornado, flooding, power outage, fire, etc. is important.
This came to mind as I’m watching the weather report about us getting hit with a Nor-easter this evening.
I also think about it because I’m a member of Westport’s Community Emergency Response Team, community volunteers supporting emergency services, and in the past we have helped run shelters for residents who had to leave their homes.
Here is a link to Are You Ready, prepared by the Westport Weston Health District. While some of it is specific to those towns, contact numbers for example, most is general preparedness information pertinent to anyone and it is nicely laid out and easily readable.
Another place for info is this link to an article on the National Caregivers Library site about things to consider.
Also a link to www.ready.gov, a Homeland Security web site.
Would you like to connect with another FTD caregiver? No support group in your area?
The AFTD has a program where they can match FTD caregivers who are in a similar situation.
After agreement by both parties, they share a name and a contact number or email, but no other personal information. You take it from there.
To request a match or to register, contact the AFTD at firstname.lastname@example.org or toll-free 866-507-7222 for details.