The CT FTD Foundation will be hosting their annual wine tasting on March 11, 2017 at the DoubleTree Hilton in Bristol. I went last year, it was wonderful! Great venue, good food, entertainment, raffle items and a very worthy cause.
Arden Courts will provide respite care in a separate room if you bring the person with FTD with you. Just let them know in advance. RSVP: firstname.lastname@example.org to confirm.
Meetings are the third Sunday of every month at Arden Courts Memory Care, 45 South Rd, Farmington, CT. Time: 1:00pm – 2:30pm. Hosted by the CT FTD Foundation, meetings are free. For more information contact email@example.com
On Sunday, October 16, 2016, Esther and Keith Harvey from The Connecticut Frontotemporal Dementia Foundation, Inc. educated people about FTD during the “Walk to End Alzheimer’s” in the Greater Hartford, CT area. An awareness table was offered with information on FTD, AFTD and The Connecticut Frontotemporal Dementia Foundation, Inc. Thank you, Esther and Keith, for spreading much needed FTD awareness!
Dates: Wednesday, October 5th and 19th, 4:30pm to 5:45pm.
Meeting Location : CaringKind, (formerly the NYC Chapter of the Alzheimer’s Association) 360 Lexington Ave., 3rd Floor, New York, NY. Two blocks from Grand Central Terminal.Facilitator : Jill Goldman, MS, MPhil, CGC – 212-305-7382 – JG2673@cumc.columbia.eduRSVP required. Please contact Jill if you are interested in attending.Meets: Twice Monthly, First and Third Wednesday, 4:30pm to 5:45pm
Fairfield County – This group is in the process of being formed. If you are interested, send an email to Ed Fitzgerald.
Farmington, CT – about 1 hour 15 min from the Westport area
The CT FTD Foundation has a support group meeting for all caregiver’s and families/friends who have a loved one diagnosed with Frontotemporal Degeneration (FTD).
The support group meetings are a chance for everyone to share their experiences and express concerns. It also gives a chance to share ideas that have worked for other caregivers going through the same experience. Meetings are informal.
You are welcome to bring your loved one with FTD, Arden Courts will provide respite care in a separate room. Please just let us know in advance if your loved one will attend.
Raising money for FTD research and programs. The 4th Annual CT FTD Foundation Golf Tournament is on Friday, August 19, 2016, at Lyman Orchards Golf Club in Middlefield, CT.Contact – firstname.lastname@example.org – with any questions.
The CT FTD Foundation will be hosting their 4th Annual Golf Tournament on August 19, 2016 at Lyman Orchards Golf Club in Middlefield, CT. Details will be posted on their website, Facebook page, and newsletters as the event gets closer. Contact them with any questions – email@example.com.
The CT FTD Foundation 5th Annual Wine Tasting will be held on Saturday, March 12th, 2016 at the DoubleTree by Hilton in Bristol. We hope we have finally found a modern venue that can accommodate our growing needs and help us deliver a fabulous event.
Tickets are $35.00 in advance, $40 day of event and will include appetizers, wine & beer samples.
Raffle prizes and silent auction items will also be at the event as well.
The FTD seminar sponsored by the CT FTD Foundation and hosted by the River House Adult Day Center in Cos Cob was a success. Thirty five health care professionals, including some family caregivers, attended the event and there were more on the waiting list once registration was closed.
The featured speakers were Dr. Edward (Ted) Huey, who specializes in FTD at Columbia University Medical Center and Jill Goldman, MS, MPhil, CGC, Senior Staff Associate and Genetic Counselor at Columbia University Medical Center. Their presentation “Diagnosing Frontotemporal Degeneration, the Dementia No One Knows About” described FTD, its symptoms and behaviors, how the disease differs from Alzheimer’s and the role genetics play in diagnosis and assessing hereditary risk within a family.
The mission of the Connecticut Frontotemporal Dementia Foundation is to promote the funding necessary for research in finding the cause, therapies, and cures for FTD; support those diagnosed with FTD along with their families and caregivers; educate health professionals so that they have the knowledge and skills to work with FTD patients and families; advocate with Public Officials to provide adequate and appropriate programs and services.
The River House’s mission is to support and enrich the quality of life for seniors living with age-related needs and impairments in a safe and nurturing environment by providing customized day-time programs and services that stimulate intellectual, physical and emotional well-being, professional monitoring of health and personal care needs and counsel and peace of mind for caregivers and families.
The Association for Frontotemporal Degeneration works to improve the quality of life of people affected by FTD and drive research to a cure. They promote and fund research toward diagnosis, treatment and a cure; Stimulate greater public awareness and understanding; Provide information and support to those directly impacted; Promote and provide education for healthcare professionals; Advocate for research and appropriate, affordable services.