Wouldn’t it be nice to have a place to go to get a brief description of terms like Aphasia, Acetylcholinesterase inhibitors, Dysphagia, Executive function, Lumbar puncture, Neuroleptic drugs, Tau, and many more terms we hear about.
Well there is.
FTDtalk, run by a group of scientists investigating FTD at the University College London Institute of Neurology in the UK, put together a glossary. Thank you scientists!
Go to www.ftdtalk.org/glossary/
“The holidays can be a time of renewal – renewal of friendships through visits and cards, renewal of family relationships through gatherings and shared meals, and renewal of one’s faith. But the holidays also are a time that can be particularly challenging for a caregiver. It is a time during which the changes in one’s life are highlighted and there are additional demands placed upon on an already stressed life.” Read more …
Not sure what would make a good gift for a loved one living with Alzheimer’s or a related form of dementia? Read their blog for a few good ideas, a list of suitable practical items and those that may help recall fond memories.
I just found out about this today. It is open to the public.
Thursday, March 10, 2016 | 4:30pm – 6:30pm
Westport Center for Senior Activities
21 Imperial Avenue
Westport CT 06880
If you are not familiar with the movie ….
“Still Alice,” is a movie that gives us a rare window into the experience of living with Alzheimer’s disease—a glimpse of the inside looking out.
Dr. Alice Howland (Julianne Moore), a renowned linguistics professor, starts to forget words. When she receives a diagnosis of younger-onset Alzheimer’s disease, Alice and her family find their bonds thoroughly tested. Her struggle to stay connected to who she once was is frightening, heartbreaking and inspiring.
The screening is sponsored in part by the CT Chapter of the Alzheimer’s Association and representatives will be there for a discussion and to answer questions.
Frontotemporal Degeneration (FTD): The Dementia No One Knows About
- Symptoms and behaviors of FTD
- How FTD differs from Alzheimer’s
- What your healthcare professionals will look for, to pinpoint the disease
- How genetics plays a role in FTD
Dr. Edward Huey, Assistant Professor of Psychiatry & Neurology, Columbia University
Jill Goldman, MS, MPhil, CGC, Senior Staff Associate & Genetic Counselor, Columbia University
Registration required. See March 14 FTD Seminar Flyer for details.
A recent article in Neurology Now explains the differences between the four most common types of dementia (including FTD), and four other less common forms of dementia. Understanding these differences can affect planning, management, and prognosis. Read the entire article here.
As we approach Christmas and New Year’s, I’m reposting these tips from the AFTD, the Alzheimer’s Association and Caregiver Magazine. With some planning and adjusted expectations, celebrations can still be happy, memorable occasions.
AFTD Caregiver Hints for the Holidays
Holidays and Alzheimer’s Families
Holiday Stress and Caregiving