From the AFTD web site:

AFTD LogoThis article from The Age out of Australia discusses the effects of dementia on sexual behavior.


An excerpt:

“While Mrs Fairhall loved their intimate connection, she says sometimes the mismatch in their desire for sex became difficult. For many years, she grappled with these issues privately because they were too difficult to talk about with friends and family, and health professionals never seemed to ask leading questions that would prompt the discussion.

Despite being raised in a family where discussions about sex were taboo, Mrs Fairhall, 71, has chosen to speak out about her experience because she suspects too many people do not understand the many varied and complex sexual issues dementia raises. This week the world’s attention was drawn to the case of an American man charged with sexually assaulting his wife while she was living with dementia in a residential aged care facility.”


AFTD Conference to Target Most Prevalent Form of Young-Onset Dementia

AFTD will hold its 2015 Education Conference at the DoubleTree Hotel in Mission Valley, California on Friday, April 24. Attendees–to include individuals diagnosed, family members and health Conf Logoprofessionals– will engage experts in FTD research and clinical care, nonpharmacological interventions and hospice. The full press release is accessible here. Conference agenda is available here.


From the movie’s press release.

“Pamela Hogan and Connie Shulman’s documentary LOOKS LIKE LAURY, SOUNDS LIKE LAURY has its national broadcast television premiere on Tuesday, March 10, 2015, at 8 p.m. on WORLD Channel as part of the third season of the AMERICA REFRAMED series.

For one year, Hogan and Shulman follow Laury in her long, inexorable descent to fronto-temporal dementia, a little-understood disease that strikes people in the prime of life. It is the profoundly personal portrait of a woman who is facing the unthinkable and the impact her progressive disease has on loved ones.”

Visit their web site for more information about the movie and about FTD.

Vacationing with someone with FTD

This subject has come up at two of my support groups recently, as the vacation season approaches.

Travelling with someone with dementia requires knowledge and preparation. Not sure how to do it, what to consider, where to get help?

EvaSo, I asked the person who runs the business networking group I attend since she is a travel agent. I was surprised when she said that is part of her business, that she works with families to plan, make arrangements, and has a network of trained travel companions who specialize in Alzheimer’s and memory care.

According to her flyer, “They are skilled, trained and compassionate travel aides who will attend to your family member’s memory care needs while on vacation. Enjoy your vacation together as a family, not as a caregiver. Rest assured that your loved ones are being genuinely cared for by our trained travel aides while you and they enjoy a wonderful, relaxing and stress-free family vacation.”

Her name is Eva Greenwald and her company is Eva’s Best Travel and Cruises.

Here is a link to her Alzheimer’s flyer for Eva’s Best Travel and Cruises.

Eva will be attending the July 10th meeting of the Norwalk Senior Center Caregiver Support Group to talk about her services.  The meeting starts at 10:30am, 11 Allen Road, Norwalk, CT. For more info, contact Lynn Westfield at


FTD Caregiver Support Group Meeting – NYC – May 21st

Time: 4:30pm to 5:45pm

Location : The Alzheimer’s Association 360 Lexington Ave., a couple of blocks from Grand Central Terminal, 4th Floor, New York, NY

Facilitator : Jill Goldman, MS, MPhil, CGC  – 212-305-7382 – JG2673@cumc.columbia.eduAnyone interested in attending must contact  Jill.