Rescheduled – FTD Seminar for Caregivers and Professionals in Bethel, CT

Cancelled due to the snow storm on March 14th, Maplewood at Stony Hill in Bethel has reshceduled its educational seminar for both professionals and personal caregivers about FTD.

During this educational session you will learn about the differences between Frontotemporal Dementia (FTD) and other forms of dementia, the subtypes of FTD, common behavioral expressions and strategies for managing behaviors.

DATE: Wednesday, April 26th at 4:30 PM – 7:00 PM

LOCATION: Maplewood at Stony Hill, 46 Stony Hill Road, Bethel, Connecticut

For more information or to RSVP, contact Eileen Duggan at 914-534-1126 or at eduggan@maplewoodsl.com.

“Using the iPad to Reach People with Dementia” – April 6, 2017, CT Chapter Alzheimer’s Education Conference

I’ll be presenting and demonstrating the approach I developed to use the iPad with my ipad-diane-arden-aug2015-03wife at the Alzheimer’s Education Conference on April 6th in Cromwell,  CT. It is an accredited course for healthcare professionals and open to family caregivers.

Description:

Ed Fitzgerald’s wife Diane was diagnosed with Frontotemporal Degeneration (FTD) in 2010. Using his technology experience, he developed an approach to using the iPad to keep her engaged and mentally stimulated, which is what he will talk about here today.

During this seminar, Ed will talk about how he uses the iPad with his wife and the process by which he created a customized set of activities that are of interest to his wife. He will offer advice on how to proceed if someone is interested in pursuing it with their loved one.

He also talks about getting other family members involved and the benefits to both the loved one and caregiver. While he uses an iPad, some of what he talks about applies to other tablet devices as well. You don’t have to be a techie to benefit from this seminar.

  • iPad Demonstration
  • Examples of activities using the iPad
  • Apps recommended for those with dementia, games, videos, audio, music, news, photos, etc.
  • The effect on behavior, agitation, feelings, communication, participation
  • How to get started, identifying interests, getting educated, finding the right apps
  • Guidance on how to use the iPad effectively and what doesn’t work
  • How it can be used in a group setting in an assisted living facility, nursing home or senior center.

Register at the Alzheimer’s Education web site.

Click here for more information about the conference.

Meeting with Rep. Jim Himes regarding caregiving

I was invited by the CT Chapter of the Alzheimer’s Association to meet with Rep. Jim Himes along with three other caregivers. The objective of the meeting was to help him understand the challenges of being a caregiver and raise his awareness and get his support for two pending pieces of legislation.

We all had some powerful stories to tell and I think we had some impact on him. He listened patiently and asked some good questions. After breaking, he continued to talk one on one with a couple of us. Two of us were FTD caregivers.

There are two bills in Congress that address the needs of caregivers that he recently signed on for as a cosponsor.

  • Recognize, Assist, Include, Support, and Engage Family Caregivers Act of 2015 or the RAISE Family Caregivers Act – H.R. 3099
    This bill directs the Department of Health and Human Services (HHS) to develop, maintain, and periodically update a National Family Caregiving Strategy. HHS shall convene a Family Caregiving Advisory Council to advise it on recognizing and supporting family caregivers. Read more.
  • PCHETA: Palliative Care and Hospice Training Act – H.R. 3119
    This bill amends the Public Health Service Act to require the Department of Health and Human Services (HHS) to award grants or contracts for Palliative Care and Hospice Education Centers. These Centers must improve the training of health professionals in palliative care and establish traineeships for individuals preparing for advanced education nursing degrees, social work degrees, or advanced degrees in physician assistant studies in palliative care. Read more.

We should all take the opportunity to speak to our representatives when they hold their town hall, community meetings, write to them, and make sure that caregiving is a topic that they hear about and understand.

 

FTD Seminar for Caregivers and Professionals in Bethel, CT

mwstnyhill_dementiaseries-rebekah-wilsonMaplewood at Stony Hill in Bethel is hosting an educational seminar for both professionals and personal caregivers about FTD.

During this educational session you will learn about the differences between Frontotemporal Dementia (FTD) and other forms of dementia, the subtypes of FTD, common behavioral expressions and strategies for managing behaviors.

DATE: Tuesday, March 14TH, 4:30 PM – 7:00 PM

LOCATION: Maplewood at Stony Hill, 46 Stony Hill Road, Bethel, Connecticut

For more information or to RSVP, contact Eileen Duggan at 914-534-1126 or at eduggan@maplewoodsl.com.

Did you know? The AFTD has a YouTube Channel

On that channel is the second installment of the AFTD’s Educational Webinar Series which brings in experts to address issues important to all whose lives are impacted by FTD.

AFTD Education Webinar, January 12, 2017: A Care Paradigm for Persons with FTD

vidPresented by Dr. Alvin Holm, this AFTD educational webinar explores how FTD treatment benefits from an integrated and comprehensive approach. Learn how symptom-specific therapies, wellness management and environmental support can help caregivers manage FTD care more effectively.

Alvin Holm, M.D., FACP, is Founder and Director of the Cognitive and Behavioral Disorders Program at Bethesda Hospital in St. Paul, Minnesota. He has more than 25 years of experience in adult medicine and neuropsychiatry.

There are about 25 other videos on that channel as well, events, personal messages, a PSA and more. AFTD YouTube Channel.

Save the Date: 20th Annual Dementia Education Conference – April 6, 2017

Registration opens up in mid-February. Caregivers are welcome to attend. There is a fee. Last year it was $60. I’ve attended it more than once and have found it to be very informative.

Great speakers and a variety of vendors displaying their products and services. There has been a session on FTD the times I’ve attended.alz-conf

For professionals who attend, they can get continuing education credits.

It is held at the Radisson Hotel in Cromwell. Sponsored by the Alzheimer’s Association, CT Chapter. More info.

 

AFTD’s “With Love Campaign” to Fight FTD

From the AFTD web site:

“Inspired by the day dedicated to love–Valentine’s Day–AFTD’s With Love campaign is an opportunity for you to honor or remember a loved one impacted by FTD. During the month of February,
with-loveyou can share your story of love, spread FTD awareness and raise funds to support AFTD’s mission simply by creating a fundraiser. Over the past five years, this campaign has raised more than $247,000 to fight this disease. Will you choose to fight FTD, With Love?” More info.  To Donate.