FTD Educational Seminar in Greenwich was a Success!

The FTD seminar sponsored by the CT FTD Foundation and hosted by the River House Adult Day Center in Cos Cob was a success. Thirty five health care professionals, including some family caregivers, attended the event and there were more on the waiting list once registration was closed.

The featured speakers were Dr. Edward (Ted) Huey, who specializes in FTD at Columbia University Medical Center and Jill Goldman, MS, MPhil, CGC, Senior Staff Associate and Genetic Counselor at Columbia University Medical Center. Their presentation “Diagnosing Frontotemporal Degeneration, the Dementia No One Knows About” described FTD, its symptoms and behaviors, how the disease differs from Alzheimer’s and the role genetics play in diagnosis and assessing hereditary risk within a family.

The mission of the Connecticut Frontotemporal Dementia Foundation is to promote the funding necessary for research in finding the cause, therapies, and cures for FTD; support those diagnosed with FTD along with their families and caregivers; educate health professionals so that they have the knowledge and skills to work with FTD patients and families; advocate with Public Officials to provide adequate and appropriate programs and services.

The River House’s mission is to support and enrich the quality of life for seniors living with age-related needs and impairments in a safe and nurturing environment by providing customized day-time programs and services that stimulate intellectual, physical and emotional well-being, professional monitoring of health and personal care needs and counsel and peace of mind for caregivers and families.

The Association for Frontotemporal Degeneration works to improve the quality of life of people affected by FTD and drive research to a cure. They promote and fund research toward diagnosis, treatment and a cure; Stimulate greater public awareness and understanding; Provide information and support to those directly impacted; Promote and provide education for healthcare professionals; Advocate for research and appropriate, affordable services.

 

 

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“Diagnosing Frontotemporal Degeneration, the Dementia No One Knows About” – Seminar Nov. 17

CaptureDate: Tuesday, November 17, 7pm to 8:30pm

Location: River House Adult Day Center, 125 River Rd Ext, Cos Cob, CT 06807,  RSVP: Lynn at (203) 622-0079

 

Program:

Frontotemporal Degeneration (FTD) is not as rare as once thought; it is considered to be the second most common cause of early onset dementia. However, because of the wide range of symptoms and their gradual onset, FTD is often initially misdiagnosed as a psychiatric problem, Alzheimer’s disease, Parkinson’s disease or vascular dementia.

Dr. Edward (Ted) Huey, who specializes in FTD at Columbia University Medical Center will describe FTD, its symptoms and behaviors, and how the disease differs from Alzheimer’s. He will talk about how a trained and experienced health care professional can look for features that rule out other diagnoses and identify features that pinpoint FTD.

Jill Goldman, MS, MPhil, CGC, Senior Staff Associate and Genetic Counselor at Columbia University, Taub Institute for Research on Alzheimer’s Disease and the Aging Brain will speak about the genetics of FTD, the role genetics play in diagnosis and assessing hereditary risk within a family.

The seminar is for medical and health care professionals as well as those who think a loved one may be suffering from the disease.

Light refreshments will be served.

Cost: No charge, a $10 donation is optional.

Sponsored by the River House Adult Day Center and the CT FTD Foundation

Jill Goldman, MS, MPhil, talks about FTD Caregiving

These videos are a must see for those who are new to caregiving for someone with FTD. Brief, concise, they cover some key aspects from the beginning to looking toward the future.

FTD: Caring for the Caregiver

A conversation with Jill Goldman, MS, MPhil

Jill Goldman is a genetic counselor at the Taub Institute of Columbia University Medical Center.  She specializes in dementias and specifically in frontotemporal dementia, and she runs the FTD Caregiver Support Groups at the New York City branch of theJill video Alzheimer’s Association and the Metropolitan Museum of Art.

Watch