Seek support from other FTD or Dementia caregivers

You can great advice and tips from other caregivers. There is the opportunity to bounce ideas off of each other, as well as comfort in knowing you are not alone, that other people have been there too. And sometimes they may even make you laugh, or just feel good, at a time when you need it the most.

As you look through this list, keep in mind that not all groups are the same. Try a group and see if it is the right fit for you. I left the first group I went to after a couple of months, then found a group that was right for me.

Group Meetings

  • There are groups that meet in NYC and in Farmington, CT that are specifically for FTD. Both are groups I have gone to, here are the details.
  • There is a Dementia Caregiver Group that meets at the Norwalk Senior Center, not specifically FTD, but I generally attend. Details.
  • I am in the process of starting an FTD support group in Fairfield County if there is enough interest. Contact me if you are interested.
  • Look for an Alzheimer’s group. There are groups that meet in Greenwich, Darien, Norwalk, Fairfield, here is the list for all of CT on the CT Alzheimer’s Association site, along with the contact info and the type of group, some may be for men, women, spouses only, etc.

Online

  • There is an active FTD spouse support group on Yahoo. I am a member, have not participated much but do see the posts and there is good interaction. Here are the details.

One on one

  • The AFTD offers something called Informal Caregiver Connections. Register for the program and they will connect you with another caregiver, first checking to make sure you and the other caregiver agree to be introduced. Contact them at info@theaftd.org or 866-507-7222.
  • I have not formally participated in that program, but have connected one on one with people who have found me online. It has proven to be effective. I am currently in touch with someone from NYC whose spouse was recently diagnosed, she is exploring care options, she and I have not met in person, but have exchanged emails and talked on the phone. Feel free to contact me.

 

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Dementia Caregiver Support Group at the Norwalk Senior Center

Date/Time: October 22nd, 10:30 to 11:30am

Location: Norwalk Senior Center, 11 Allen Road, Norwalk

The Dementia Caregiver Support Group at the Norwalk Senior Center is for caregivers of family members or friends diagnosed with Dementia caused by Alzheimer’s, Frontotemporal Degeneration (FTD) or other conditions or diseases.

The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information thatNSC Photo might be helpful. Meetings are friendly and informal. Occasionally there are themes and guest speakers.

If you would like to bring your loved one, activities will be provided by Wilton Meadows.

Membership in the Senior Center is not required.

For more information or if you are interested in participating, please call Lynn at (203) 847-3115 ext.108 or send her an email at mow@norwalksc.org.

Dementia Caregiver Support Group Meeting in Norwalk – September 10th

Date/Time: September 10th, 10:30 to 11:30am

Location: Norwalk Senior Center, 11 Allen Road, Norwalk

The Dementia Caregiver Support Group at the Norwalk Senior Center is for caregivers of family members or friends diagnosed with Dementia caused by Alzheimer’s, Frontotemporal Degeneration (FTD) or other conditions or diseases.

The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information thatNSC Photo might be helpful. Meetings are friendly and informal. Occasionally there are themes and guest speakers.

If you would like to bring your loved one, activities will be provided by Wilton Meadows.

Membership in the Senior Center is not required.

For more information or if you are interested in participating, please call Lynn at (203) 847-3115 ext.108 or send her an email at mow@norwalksc.org.

“Using the iPad with someone who has Dementia” Seminar at the Norwalk Senior Center

You are invited to this seminar at the Norwalk Senior Center on September 1 from 10:30 to 11:30am. The Center is located at 11 Allen Road in Norwalk.

NSC Flyer“Keeping a person with dementia engaged in activities can be very challenging. Ed Fitzgerald, a technology consultant whose wife is living with Frontotemporal Dementia, looked for ways to use technology to help her.

After some trial and error, he began using the iPad and created a home screen of activities combining, apps, links, games, videos, pictures and more, which he uses when they are together.

During this seminar, Ed will demonstrate how he uses the iPad, the process by which he created a customized set of activities that are of interest to his wife and offer advice on how to proceed if someone is interested in pursuing it with their loved one.

While he uses an iPad, some of what he talks about applies to a Kindle and Nook as well.”

The seminar is sponsored by the Norwalk Senior Center Dementia Caregiver Support Group.

iPad Seminar – NSC – Sept 1 Flyer

For more information, contact me via email.

Dementia Caregiver Support Group Meeting in Norwalk

Date/Time: August 27th, 10:30 to 11:30am

Location: Norwalk Senior Center, 11 Allen Road, Norwalk

The Caregiver Support Group at the Norwalk Senior Center is for caregivers of family members or friends diagnosed with Alzheimer’s, Parkinson’s or Dementia.

The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information thatNSC Photomight be helpful. Meetings are friendly and informal. Occasionally there are themes and guest speakers.

Activities for loved ones will be provided by Home Care Assistance of Norwalk. Please contact Ed Fitzgerald (email) if you plan on bringing your loved one.

Membership in the Senior Center is not required.

For more information or if you are interested in participating, please contact Lynn Westfield (email).

Caregiver Support Group at the Norwalk Senior Center – June 11th

Date: June 11th, 10:30 to 11:30am

Location: Norwalk Senior Center, 11 Allen Road, Norwalk

The Caregiver Support Group at the Norwalk Senior Center is for caregivers of family members or friends diagnosed with Alzheimer’s, Parkinson’s or Dementia.

The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information thatNSC Photomight be helpful. Meetings are friendly and informal. Occasionally there are themes and guest speakers.

Meetings are on the second and fourth Thursdays of the month. At the first meeting of the month, there are usually Dementia Care Specialists from Wilton Meadows who provide activities for loved ones while caregivers meet. Please call to confirm before bringing your loved one.

Hosted by Lynn Westfield, the group is free and open to all. Membership in the Senior Center is not required.

For more information or if you are interested in participating, please call Lynn at (203) 847-3115 ext.108 or send an email to her at mow@norwalksc.org.

Caregiver Support Group at the Norwalk Senior Center – May 14th

Date: May 14th, 10:30 to 11:30am

Location: Norwalk Senior Center, 11 Allen Road, Norwalk

The Caregiver Support Group at the Norwalk Senior Center is for caregivers of family members or friends diagnosed with Alzheimer’s, Parkinson’s or Dementia.

The group offers caregivers an opportunity to share their experiences, help others by sharing their ideas, find out about resources and information that NSC Photomight be helpful. Meetings are friendly and informal. Occasionally there are themes and guest speakers.

Meetings are on the second and fourth Thursdays of the month. At the first meeting of the month, there are usually Dementia Care Specialists from Wilton Meadows who provide activities for loved ones while caregivers meet. Please call to confirm before bringing your loved one.

Hosted by Lynn Westfield, the group is free and open to all. Membership in the Senior Center is not required.

For more information or if you are interested in participating, please call Lynn at (203) 847-3115 ext.108 or send an email to her at mow@norwalksc.org.